Let’s start with the ridiculous. This found its way to me yesterday:

Grapefruit

What? Grapefruit has been known to prevent ‘diabetics’ from what? If anyone can explain that to me, please do so in the comments below. (And yes, it originated in some ridiculous we-can-cure-you-of-everything site that promises the world and delivers nothing. Except bad grammar.)

Thankfully, it was balanced by this:

NCDFree

Sandro Demaio and the team from NCDFree are bright, sharp, and looking at public health in innovative ways. Check them out. (Don’t bother checking out the wellness idiots though. Grapefruit is a yummy fruit – delicious in a citrus salad, great mixed with vodka and blood orange juice. But it won’t prevent anything.)

Recently, I had a period where for three days, I dealt with BGLs that would not drop below 15mmol/l. Most of the time, they were above 20mmol/l, which is revolting and even more so when considered in the US-measure: 360mg/dl. (I’m not sure why, but for those few days, I kept converting my high numbers to US numbers. For anyone playing at home, I hit 461mg/dl. Don’t play at home. Really. Don’t. And file under: #StupidThingsIDoWhenHigh and also, I am good at multiplying by 18.)

Anyway, it was crap. I felt crap. And I wanted to cry. A couple of times my stupid meter simply said ‘hi’ which is not so much friendly as a declaration of giving up. It doesn’t know where to go above about 33mmol/l, so it just stops working, instead throwing out random greetings. My CGM graph was off the charts.

Why was I high (hi)? I’ve no idea. Seriously. No idea. I wasn’t eating cupcakes for breakfast, lunch and dinner. I went through the usual checklist of ‘things that could possible make my BGL high’ which includes:

  • Eating cupcakes for breakfast, lunch and dinner
  • Forgetting to bolus
  • Not bolusing enough
  • Bent cannula
  • Dodgy insulin
  • Stress
  • Impending virus
  • Period
  • Exercising when already high (ha, as if!)
  • Eating ridiculously large quantities of ridiculously high carb foods
  • Eating a whole jar of Nutella in one sitting
  • Infection at cannula site
  • Pump not delivering properly
  • Following a paleo diet/I Quit Sugar diet and pretending I’d cured myself of diabetes and didn’t require insulin anymore
  • Anything and everything else ever and ever and ever and ever

I wasn’t forgetting to bolus – I actually was correcting every couple of hours. I (as it turned out, unnecessarily) ripped out three cannulas – and starting looking at the fourth one very suspiciously, wishing I had see-through skin so I could identify any bent-cannula hiding under the skin. And then thinking about how creepy having see-through skin would be and then vomiting a bit in my mouth.

Nope. No reason at all.

I stopped eating anything carb-containing, instead eating a salad of greens and chicken for lunch and chicken soup with (non-carb containing) vegies for dinner. I rage-bolused for the milky coffee that I really needed at 3pm –the only carbs I consumed for the whole day.

And still, every time I checked, I was sitting close to 20mmol/l. Any reading of 15mmol/l, which ordinarily would result in me throwing a mini-tantrum, seemed a victory. But it was fleeting and before long, I would be heading upwards again.

By day three, I felt that I had an aura of exhaustion surrounding me. My limbs were heavy and climbing the stairs to my office was draining. I countered my exhaustion with ridiculous quantities of coffee, replacing my usual latte for a short macchiato to minimise the milk I was drinking.

I had a lunch of sashimi (my favourite no-carb lunch) and got on with my afternoon at work.

At about 2pm, I checked my BGL, expecting to see another high number. But instead, I had my first number under 10mmol/l for three days: 9.8mmol/l said my meter.

Over the next couple of hours, I kept a close eye on things. I had quite a bit of insulin on board (yes, I know I shouldn’t, but of course I rage bolus when numbers won’t come down and I am frustrated) and I didn’t want to crash and burn with a nasty hypo.

I kept a fruit box of pineapple juice next to me and took a sip every now and then and managed to not dip below 4mmol/l.

By the next day, I was back on a far-more level playing field. My numbers were in-range and there were no more surprises.

I reviewed my BGL readings and pump activity for the previous days and in all honesty can’t say what I would have done differently. There really was absolutely no discernible reason for the crazy-high numbers – at least none that I could see.

Although my BGLs remained stable for a few days afterwards, it took me some time to get over the sludgy feeling that follows an extended period of high numbers. I was tired and achy and my legs continued to feel heavy.

All in all, it was about six days of feeling below par – first from the high numbers and then its aftermath. And, of course, the emotional frustration that comes with not being able to pin point the reason for feeling crap – and then being able to fix it.

When people ask what living with diabetes is like, I don’t know how to put into words these sorts of experiences in a way that makes any sense. I can explain the number of times I have to jab my finger to check my BGL. I can talk about how I wear a little box shoved in my bra and press a few buttons for it to deliver me some life-saving medication. I can count out the number of hours I spend with healthcare professionals each year.

But how to explain and quantify the frustration? How do I explain the sense of helplessness when I can’t work out what is going wrong? How do I explain that sometimes there are simply no answers and we just have to ride it out until things (hopefully) get back on track?

I’ve no idea. But for me, this is the essence of diabetes. The frustration and helplessness. And it remains for a long time after numbers get back in range.

Last week, I tweeted that I really should start a new Twitter account that tracks all the stupid things I have done (and continue to do) while having a hypo.

I’ve spent the last couple of days collating just a few of the things I have done. These are recent things. I think, perhaps, I have managed to wipe out a few memories of other stupid things I’ve done when low.

  • Stood with the fridge open, staring at juice boxes, jars of jam, and bottles of full strength soft drink for 10 minutes while eating a cucumber. Because that is the perfect way to bring up those BGLs really, really fast!
  • Sorted through M & Ms, removing the green ones that I had convinced myself would lower rather than raise my BGL. I’ve done this many times.
  • Referred to my daughter as a penis. Kind of. One day, just before we went overseas at the end of last year, I had one of those days where I just could not get my BGL above 4mmol/l. I was rushing around trying to tie up loose ends before we left. I asked the kidlet to help me with something and when she finished and I went to thank her I got a little confused. We have many nicknames for our girl. Two of my favourites are ‘Sweet Pea’ and ‘Sweetness’. In my hypo-fug, I said ‘Thank you Sweet Pea-ness’. As I wrote in the text message I sent to Aaron just after I said it: ‘Say it out loud.’ (She reminded me of this just yesterday. And then felt the need to tell my parents about it when we were visiting. Add this to the list of things that have me in the running for ‘mother of the year’.)
  • Written on the wall in the kitchen.
  • Stood at the juice aisle of the supermarket repeating ‘Drink the damn juice, Shelby.’ Go ahead and imagine the looks of the people around me.
  • Just the other day I poured my morning coffee over my jeans. While I was trying to take a mouthful. How? Really, how is this possible? My legs and my mouth are nowhere near each other!
  • Answered the phone. In Italian. If you ever call me and hear me pick up with ‘Pronto’, know that I need sugar. Stat.
  • Cried uncontrollably. Just because.
  • Laughed uncontrollably. Just because.
  • Bored a service station attendant almost to tears, gushing because I had discovered he sold green apple Mentos. The conversation went along the lines of ‘ Apple. Mentos. You have green apple Mentos. I love green apple Mentos. I’ve never seen them in Australia before – only in France. Actually, I’ve not really seen any green apple sweets in Australia. It’s not really our thing. Is it? But in France? They love it. There is green apple everything. Did you know that? Okay. I am going to buy some of these. A lot of them. All of them. Can you just sell me all of them? Whatever you’ve got – I’ll take it!’
  • Yeah, so bought about 40 tubes of green apple Mentos.
  • Had to call out to a sales assistant to help me get out of a dress I was trying on in Seed. I simply could not work out how to undo it and lift it over my head. (Thankfully, the staff at the Carlton Seed store know me well…)
  • Sat on the dog. I do this all the time when I am low. It’s as though my hypo-brain stops registering small fluffy animals as things to not sit on. Jasper now just looks at me as if to say ‘Again?’ The puppy is still indignant about it.
  • Tried to remove a just-baked cake from the oven. Without oven mitts. Didn’t end well. For my hands – or the cake for that matter, which was dropped on the floor, fell out of the (hot) tin and crumbled on the floorboards.
  • Used a whole bottle of shampoo washing my hair in the shower. I stood in the shower for over half an hour washing, rinsing, washing, rinsing, washing, rinsing, washing, rinsing until there was nothing left in the bottle. Low blood sugar = very, VERY clean hair.
  • Rearranged furniture. Because hypos sometimes (and somehow) give me superpowers, it is the right time to move a couch, or a (full) filing cabinet, or a bookshelf (no need to remove the books). And of course, there is no way that this exercise will result in a further lowering of BGLs, will it? Of course not! (Hypo boy does this too!)
  • Gotten ready to go out and left the house wearing shoes that didn’t match. In my defence, they were both black.

Thankfully, there are many things I’ve NOT done while hypo. I am pretty committed to the ‘Treat before you Tweet’ mantra and have managed to stay off social media when my (already limited) filter has the potential to go completely AWOL. I’ve said a few not-too-nice things to/about ‘wellness experts’ when not hypo; I dread to think what I’d say if I forgot to keep myself nice.

Okay – you’re turn. What are some of the things you have done whilst low? Go!

Yesterday I spent the day with this guy:

Claudio

And you can read all about it over at the Diabetes Australia – Vic blog.

So, so glad it’s Friday! Some Miles Davis was suggested. So here you go:Sketches of Spain.

One night, when the kidlet was three years old, we heard her cry out. She had been in bed for an hour or so and we thought it was simply one of her usual I’m-not-tired-so-I-will-try-every-trick-in-the-book-to-not-have-to-go-to-sleep tactics. She is extraordinarily good at these!

We went into her room to find her crying – whimpering, really.

Parents: ‘What’s wrong, darling?’

Kidlet: ‘I stuck a pebble up my nose.’ (It actually sounded like ‘I stuck a pebble up my dose’ because her nose was, of course, blocked. She helpfully illustrated her story by pointing to her left nostril.)

Parents: ‘What?’

Kidlet: ‘I stuck a pebble up my dose.’

Parents: ‘Darling, what? Why did you do that?’

Kidlet: ‘To keep it safe.’

I had a look and sure enough, a pebble was firmly wedged up her tiny left nostril. I knew that the worst thing would be to try to get it out with a pair of tweezers – I would only push it further up, making it even harder to remove.

I guess we’re going to the hospital.’ I said to Aaron. Now, we’re like pretty much any other parents. We would avoid a trip to A & E at all costs. But we knew that there was no escaping this one!

So, we bundled the kidlet into the car and headed to the hospital, fortunately less than a ten minute drive from home.

As we walked up to the triage desk, I could see that it was definitely a REALLY busy night. There were parents and kids everywhere; kids that looked really, really sick. We walked in with our skipping, bright, happy three year old. Who had a pebble stuck up her nose.

Hi,’ I said to the triage nurse. ‘Our three year old stuck a pebble up her nose. It’s stuck there now.’

The triage nurse didn’t even look up. Clearly this was not a rare occurrence.

We gave all our details and were told to head to the waiting room.

How long’s the wait?’ I asked, knowing full well that this is the question that triage nurse’s despise because the answer they want to give is ‘How long is a piece of string’ but they have to be polite.

A while. About four hours. Maybe a little more.’ She said. Again, she barely looked up. I guess that it must be soul destroying to repeatedly see that look on the faces of parents who have just been told that they will not be sleeping, possibly ever again.

By this stage, the kidlet had turned into the happiest and most social kid in the world. Sure she had a pebble stuck up her nose, but it was night-time and dark and she was out and there were people around. ‘I have a pebble stuck up my dose,’ she told anyone who would listen, pointing to her nostril.

We asked her to sit with us. ‘Sweetie,’ I said. ‘Everyone else in here has come to the hospital because they are really, really sick. That is usually why kids have to get out of bed and come to the hospital. They have things that it would be better if you don’t catch. So please sit here with us. And absolutely do not speak to anyone holding a bucket. We do not want you to get gastro. Daddy and I do not want to get gastro. Got it? Don’t. Talk. To. Anyone. With. A. Bucket.’

We settled in for what we were expecting to be a long wait, so were very surprised when after about 10 minutes, a nurse called out to us.

Now,’ she said to the kidlet. ‘What do we have here?’

‘I have a pebble stuck up my dose/nose.’

‘Hmmm, let me see.’

She had a look and then turned to us. ‘Okay. That’s really stuck in there! I think she’s going to need to see the doctor, so I’m afraid you are in for a long wait. But let’s just try something; it may work. It may not.’

We were prepared to try anything to avoid a four hour wait with all the bucket children back in the waiting room!

She turned to the kidlet. ‘I want you to lie down on the bed, and open your mouth, okay?’

And then she turned to me. ‘And I want you to block her right nostril – the one without the pebble. Then, I want you to blow into her mouth, really hard. It may dislodge the pebble making it possible for me to remove it.’

‘Really?’ I said.

‘It may work, it may not,’ said the nurse. ‘Let’s try it.’

She explained what we were about to do to the kidlet who immediately asked, ‘Is it going to hurt?’

‘Not at all,’ promised the nurse.

I pressed the kidlet’s right nostril, blocking it tightly and leant down over her. ‘A really deep breath – hard!’ the nurse instructed.

I did as I was told and blew into the kidlet’s mouth.

And sure enough, the pebble not only became dislodged, but shot out of her nose. And across the room.

Apparently, the look of shock and surprise on both my and the kidlet’s face was hysterical because the nurse and Aaron burst out laughing.

I recovered from my surprise, stood up and threw my arms around the nurse. And then the kidlet. We couldn’t get out of the hospital fast enough!

I was reminded of this story the other day when I was speaking to a parent who had spent the evening before in A & E with her daughter, who has type 1 diabetes. Thanks to a tummy bug, her daughter was seriously dehydrated and dealing with very high BGLs.

The conversation shifted to the amount of time she has spent in doctors’ offices, hospitals and at the GP in the 12 months since her daughter’s diagnosis. It amounted to hours and hours and hours and hours. Her daughter had missed days of school because it had taken so long for a correct diagnosis (their GP kept telling them it was just a virus and her daughter needed rest). After a couple of weeks of this, she was rushed to hospital in an ambulance, drifting in and out of consciousness, before they were told she had type 1 diabetes.

‘I’m so sorry,‘ she said to me after we’d been speaking for about an hour. ‘I sound like I’m whinging.’

You absolutely don’t!’ I said. ‘And even if you did, I think you have something to whinge about.’

The truth is that she really wasn’t whinging. She was being very matter of fact about her daughter’s diabetes journey so far. She didn’t complain about any of the HCPs she had seen – although it would have been completely warranted if directed towards the bloody GP and his misdiagnosis.

She asked me about our kid and if she had ever been taken to A & E. ‘Only once,‘ I told her. (Actually, there was a second time when she was about 4 and had a really high fever, but we ended up at the GP clinic at the Children’s instead of having to deal with the three hour wait of the emergency department.)

‘Really? Wow! Lucky you!‘ she said. ‘Was it for something serious.’

‘Um, no. Not so much.’ I said and I told her the pebble up the nose story. She loved it – she thought it was hilarious.

But that was it; one visit to the hospital with a perfectly healthy kid who wanted to keep a pebble safe so she hid it. Up her nose. And we were out in less than an hour thanks to a superhero nurse called Nicole!

Kids with diabetes learn early on that they will be spending more than their fair share of time visiting HCPs. Their visits to A & E are often for much nastier things than a stuck pebble. Their visits last much longer than an hour.

I thought about this after I had said goodbye to the mum I’d been chatting with. In fact I thought about if for a long time. One A & E visit, appointments for her immunisations and maybe one, two at the most GP visits per year. That’s our kid’s encounters with doctors.

The mum called me the next day and asked if it would be okay to tell people the ‘pebble up the nose’ story.

‘Absolutely!’ I said. I asked her if I could write a little about our chat.

‘That’s fine,’ she said. ‘We all learn from each other. I really learnt a lot from you yesterday. Talking to adults with diabetes is really helpful for me.’ Then she paused. ‘Although, really, that trick about how to dislodge a stuck pebble from a kid’s nose is probably the most useful thing I’ve ever heard.’

This is me in a Nutella t-shirt.

Nutella t-shirt

Did you send it to me? It arrived on Monday, sent to me at work with a lovely ‘Royal Mail’ stamp on it, suggesting that someone from the UK popped it in the post. 

I would love to be able to say thank you to the person who sent it to me, so if it was you, please let me know so I can send you a virtual (Nutella) cupcake! 

It takes me somewhere between 12 and 25 minutes to drive to work in the mornings. I drive down a terribly busy road which carries trams, cars, trucks and bikes. People dash across the road whenever they can. It is hectic!

Yesterday morning, I was sitting in traffic, mentally counting down how long it would be before I got to my morning café for my take away coffee.

I yawned. ‘Need coffee,’ I thought. I yawned again. And again. ‘Oh, shit,’ I thought. Even though I felt fine, the incessant yawning gave it away. I was low.

I reached into my handbag and pulled out the pink and red Marimekko purse and, taking advantage of the banked up traffic, pushed a strip into the bottom of the meter, pricked my finger and wiped the drop of blood across the strip.

2.8mmol/l.

I swore. Loudly. So loudly that the woman in the car next to me looked over at me. We both had our windows closed.

The road is a clearway in the mornings; I couldn’t pull over. I put on my indicator, silently begging the traffic to move so I could turn left into the street ahead.

I grabbed a handful of jellybeans from my bag, and shoved them down my throat, chewing furiously as the cars in front of me inched forward.

Finally I could turn left. I pulled into the side street and parked. Turning off the engine, I sat there chewing and gulping.

How had this happened? I scrolled back through my meter and saw that less than 20 minutes earlier, just before I left the house to drop the kidlet at school, my BGL was 5.9mmol/l.

My eyes filled with tears at this point – typical response when I think about how diabetes impacts on those I love. I swiped my hand across my eyes, cursing (again) as I saw my mascara had run.

Involuntarily, my hand moved to my stomach where my CGM was fastened. As I was rushing around getting ready that morning, my pump pulsed and squealed, telling me that the sensor was dead after having been in for seven days. I knew I just needed to reset it – it was still reading beautifully.

But I didn’t. I didn’t restart it. I just shoved my pump away, thinking that I’d maybe, maybe, not sure, perhaps start it later in the day. If I felt like it.

I swore again – this time at myself.

I need this. At the moment, I need this. I am already feeling so lousy at diabetes – second guessing everything – I need whatever help I can to help me.

I looked at myself in the rear-view mirror. ‘I need this,’ I told myself, tears welling again.

After about ten minutes, I rechecked my BGL and it was back up over five. I was good to drive and make my way to work.

I went to start the car and stopped. I pulled my pump out from my bra and scrolled through the menu until I found what I was looking for. ‘Start CGM Sensor Session’.

I pressed start.

Sensor start

It is no secret that I am scathing when it comes to so-called ‘wellness experts’ sprouting health information. I’m referring to a group that, broadly, has no credentials other than a pretty face as the front person, PR savvy and a very good understanding of how to use social media.

I spend too much time looking at these sites because they frequently pop up in my social media feeds. Their reach is so significant that not a day goes by when I am not faced with some ridiculous claim or another. (No, my body is not acidic and I do not need a starter dose of lemon water in the morning to ‘alkaline my system’. Also bone broth is not a replacement for caffeine, you idiots!)

Let me be really clear about this. The one thing that these folk and I have in common is a belief in eating lots of fresh foods and minimising intake of highly processed food. I agree with that. Of course I do. I’m all about eating well and enjoying food.

But from there, we head off in completely different directions because I have something called science on my side. They have paranoia; I don’t think anyone is out to get me. They restrict food groups; I embrace moderation.

Last week, I was (unfortunately) introduced to The Food Babe. I’m not even going to begin on the name this particular ‘wellness expert’ has chosen for herself. I will however say this: Why has no one claimed The Diabetes Babe as their moniker yet?

After poking around her Facebook page and website for a while, I realised something. I had a look at a few other similar sites (well, not the Pete Evans page because I’ve been blocked!!!!) to confirm what I thought. The language they use is all so alike. It’s language consistent with propaganda.

They form an ‘army’ (#FoodBabeArmy) or a ‘tribe’ (Pete Evans), waging war on pharma, food groups (No grains! No sugar!), government, health professional bodies, scientists, healthcare professionals, health organisations. Everyone, but everyone, it seems, is out to get us. Vaccinations cause autism, drug companies are hiding cures to cancer, government is in the pocket of Big Pharma and it’s all being controlled by a little alien in a spaceship flying somewhere over Jupiter. (Or something.)

Only a couple of weeks ago, we sadly learnt of the death of Jess Ainscough who was known online as the Wellness Warrior – again, ‘battling’ against traditional cancer treatments and instead engaging Gerson Therapy to treat her cancer – a treatment option that has no scientific base to suggest it works.

The language used turns these self-styled soldiers and their rhetoric into a movement – a cause. They tell people that they are ‘fighting’ this together, when there is nothing to fight against. And they use words that make people wary which is a breeding ground suspicion.

The language is hard to cut through because it is all tied up in promising health, happiness, a better life. And who doesn’t want that?

But when you do cut through, when you start to question, when you look for real proof and evidence and anything credible to back up the flowery, pretty words, you get nothing.

They are creating the ‘Ponds Institute’ of health. They are trying to make us believe that what they are selling – and make no mistake, they ARE selling! – is the Promised Land of Health and Happiness!

And the scary thing? The scary thing is that they are unbelievably – and frighteningly –  good at it.

There are some weeks that goals are kicked, to do lists get ticked and I feel a sense of great achievement and success.

And then there are weeks where stuff just gets done – nothing major, nothing particularly significant, but still good.

  • There are fairy lights in our kitchen. The loo is next.

Fairy lights

  • I have worn my CGM all week and have not had a meltdown at any point. Plus, today, I think I will be okay wearing it a little longer. I did say that I would be ripping it out this morning because I won’t need a security blanket tonight once Aaron is back from a week away with work. I had even imagined that moment where I would tear it from my body and dance around screaming ‘I’m free, I’m free.’ Instead, I stood in front of the bathroom mirror this morning, saw how clean and pretty the tape still looked and decided to leave it in. I reminded myself that the numbers are there to help, not hinder. And that it can be a useful tool. Deep breath. Baby steps.
  • Introduced the kidlet to the Gilmore Girls.
  • Removed about 86 used BGL strips from the puppy, who discovered they are fun to push around, eat, roll in, lob at the cat, chase and sleep with.
  • Started reading ‘Bad Feminist’ by Roxanne Gay which is everything I hoped it would be.
  • Finally shared the Pumpless in Vienna story on here – after having recited it a bazillion times in presentations in the last 10 months.
  • I didn’t get a parking ticket!!! (The week is not done yet, so let’s not celebrate that one too soon.)
  • Managed to misplace my BGL meter five different times. And the collection of places where it was later found include in the fridge, inside a packet of pasta, on top of the giant jar of Nutella. Interestingly, although perhaps not surprisingly, all food-related places.
  • I got blocked from the Pete Evans Facebook page this week. This is possibly the thing of which I am proudest. Ever. In my whole life.

Things I have not achieved and had hoped to:

  • Had my blood work done. Because I still don’t want to know the results. Because I am not ready for what the results may show. Because, because, because. Just do it already, Renza.
  • Bake cookies shaped like this. I can’t find the requisite cookie cutter. (Although just got a text message from mum telling me that she may have found me one!)
  • Get better at throwing BGL strips away after using them.
  • Become good at diabetes. That is on my to-do list each and every week. Alas, it never, ever gets ticked off. (See misplaced BGL meter for example of failing at being good at diabetes.)

It’s Autumn here in Australia. We have the most beautiful Japanese maple in our front garden and the leaves are just starting to turn a stunning deep red colour. So, here’s a seasonal song from Eva Cassidy for today’s Friday listening. Have a lovely weekend.

Once up on a time (July 2014), in a land far, far away (Vienna), there was a beautiful young woman. We will call her Jo (because that is her name). Jo was visiting Vienna to present at a conference because as well as being beautiful, she is smart and well-respected in her chosen field.

In addition to being beautiful and brainy, Jo also has diabetes (which only increases her beauty and braininess). Her insulin pump is her trusty friend, and together they had made the long trek to Vienna. (On a plane, they didn’t really walk there. Let’s not romanticise this story too much!)

But on their first day in Vienna, her pump went ‘kaputt’, which is German for ‘You’re on your own, I’m not working anymore.’

Jo was, understandably, distressed. A faulty pump would mean reduced intake of crisp apple strudel and schnitzel with noodles. Immediately, Jo got on the phone and called the pump company to let them know what was going on and organise to get a working pump to her.

Of course, it was the middle of the night in Australia, so there was no one at the pump company and she was put through to their international call centre. She was assured that someone would be in touch with her as soon as the Australian office opened the following day.

In the meantime, Jo wondered what else she could do. Who could she call that just might be able to help in the middle of the night? So she pulled out her phone, and in 140 characters or less put out this call for help.

PumplessinVienna2

And just like a fairy godmother waving her wand, the DOC came to the rescue!

The next day some DOC people sent tweets, Facebook messages, emails and possibly, but probably not, carrier pigeons to put out the call. Who could help? Who could save this damsel in distress kickass, sassy chick and get her back on a pump?

Enter the team at MySugr who are all too clever and aesthetically blessed for their own good, (seriously – they all look like poster children for….poster children), and the wonderful Marlis, who offered to lend Jo a pump.

Jo jumped on a cream coloured pony in a taxi and took herself to the MySugr HQ, hidden away in the streets of Vienna. She climbed the stairs to meet the woman with whom she’d been connected to help her…get reconnected. Marlis handed Jo a brown paper package tied up with string her spare pump.

This is the moment where Jo and Marlis met.

Jo and Marlis.png

And at this point, Jo was no longer pumpless in Vienna.

PumplessinVienna1

She continued her trip – next stop presenting at a conference in Lisbon. Where she was not pumpless. Where she could eat all the Portuguese tarts she wanted without worry.

And she lived happily ever after.  

The end

Now, this is all lovely and the outcome was, indeed, wonderful. But what was going on behind the scenes was not. Time zones are a pain in the behind to manage at the best of times; being in a different country to the one where a pump was issued is going to add a degree of difficulty to getting a replacement pump.

However, Jo faced obstacle after obstacle after obstacle from the people she expected would help her. Because this was not a tick-the-box-cookie-cutter problem, they were unable to provide her a satisfactory solution – a working pump delivered to Vienna. Diabetes is never tick-the-box-cookie-cutter easy. It is difficult, messy, crazy, all over the place!

Jo called Euro offices of the pump company – she was not necessarily expecting the Australian office to courier a new pump to the other side of the world. But everywhere she turned, she was faced with a brick wall.

Except when she turned to the diabetes online community which is made up of wonderful people living difficult, messy, crazy, all over the place diabetes lives.

I have told this story dozens of times and have presented it at conferences both here and overseas. People stop me in conference halls to ask me about it.

And the reason that I share this story – which is not mine, – is because it shows (yet again) the value and power of our community. And it shows that social media can be used to connect people in such meaningful – life saving! – ways.

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