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Recently, I shared some good news that I was finally ready to release into the wild after sitting on for a few weeks. 

Me giving Manny Hernandez a hug. We are standing on a stage with a purple background which is a giant screen. The words 'The importance of community for people with diabetes' (and Manny's name and Twitter handle @AskManny) is written in black above us. The logo for the 2019 IDF Congress is also on the screen.
Manny Hernandez gave an incredible Award Lecture at the 2019 IDF Congress.

And so, a tweet and a LinkedIn post later, I’d happily shared that I’ve been invited to give the Award Lecture in the Living with Diabetes Stream at the IDF World Congress in Lisbon later this year. When I talk about standing on the shoulders of diabetes advocacy giants, two of the previous Awardees define community and advocacy. I still can’t believe that anyone would consider me to follow on from Riva Greenberg or Manny Hernandez, who gave the lecture in 2015 and 2019 respectively. 

I was overwhelmed by the messages of support and congratulations from friends and colleagues, many from the global diabetes community, a couple from my own workplace – by and large people who know diabetes. But also, from those without diabetes too who acknowledged how honoured I would be feeling to be recognised in this way. 

But there was one comment that stood out and that was from one of the most dynamic, influential, and impactful diabetes advocates I know, Dr Sana Ajmal.

Sana’s message was this: Thanks for being unapologetically yourself! That’s what truly defines your activism. Looking forward to it!

I stopped when I saw it and read it a few times over. 

I often describe my style of advocacy as bolshy. Others have said I take no prisoners in my resoluteness. A former manager once said (I think affectionally) that I step off my soapbox only to climb onto my high horse. And I also accept that being unapologetically myself – and unapologetic in my approach – doesn’t always sit well. But Sara used the word so generously, which is probably not how everyone would see it…

I have been unapologetic in my attitude and determination. I’ve been unapologetic in the sheer doggedness I’ve employed over the last 21. I’ve been unapologetic for challenging the status quo and demanding that things change. I’ve been unapologetic in the issues that I have claimed are important to me. I’ve been unapologetic at sounding like a broken record and appearing a one trick pony when I’ve repeated over and over and over again that language matters, that peer support works, that people with diabetes have a right to be in the room and centred anytime diabetes is a topic of discussion. I’ve been unapologetic in the way I’ve challenged people – from HCPs, policy makers, diabetes organisations, industry – asking them to all do better for and by people with diabetes. I’ve been unapologetic in my fury against misogyny and the patriarchy in healthcare. 

I’ve been thinking a lot about what I plan to say when I give the Award Lecture at the World Diabetes Congress. I have decided on the theme of the talk, and it will come as no surprise to anyone that I’ll touching on successes and challenges of advocacy. When I get to thinking about what a massive enabler of my work in this space has been, there is something I keep coming back to and that is the remarkable leadership of remarkable people I’ve been fortunate enough to encounter. I’ve learnt so much from the advocates who came before me. The barriers they broke down to do what many of us now do, and the grace, confidence and, often, brazenness they needed to push through is nothing short of inspiring.

And it’s been the extraordinary curiosity and bravery displayed by those without diabetes. I will forever be grateful for the way those people never asked me to apologise, never tried to stifle my voice, never tried to centre themselves over the community and always – always – included lived experience and were led by our needs, willing to be uncomfortable when they were challenged. They are the leaders who understood our expertise and made sure it was included when diabetes was on the agenda. And understood how they could learn from it. They define the idea of diabetes allies!

I’m thrilled that I’ll have a chance to stand up at an international conference and talk about why #NothingAboutUsWithoutUs is the foundation of my advocacy and activism and how, most unapologetically, I’ll never change that.  

Two drawings. On the left is a horse with one legs and a ladder leaning against it. On the right is a stick figure of a person and the word 'me'. The figure is standing on a square that has the word 'soap' written on it. It's. meant to be a soapbox.

My new diabetes spares bag has my name on it.

I wrote a post many years ago taking the piss out of wanky ‘My day on a plate’ articles, or, as I renamed them, ‘My lie on a plate’. If you’ve ever read one of these (in Melbourne it’s a regular article in the magazine that comes with a Sunday paper) you’ll find some ‘influencer’ or celebrity who swears all they consume is hot water and lemon, steamed line-caught salmon, and organic kale and quinoa.

This is, obviously, the extreme of the ‘look how virtuous my eating is’ spectrum. Because that is what eating is all about, right? – virtue and honour and showing just how ‘good’ we are because we are all about fresh, healthy, green, CLEAN. (For the record, all food is clean. Unless it’s been dropped on the floor, and I’m not here to judge anyone’s commitment to the five second rule.)

I know I’m guilty of it too. I frequently share online the details of the food I’m making, planning to make later today, thinking of making in the future, eating, planning to eat later today, thinking of eating at some point. And that shared food is, inevitably, on the healthier side. Or the homemade side. Or the this-plates-up-beautifully side. I make hyper-lapse videos of the baking I do each week and share with friends and family and while it’s a little fun, there is a tiny part of me that knows how performative it all is. ‘Look at me in my kitchen whipping up some delectable goodie that is going to make its way into my kid’s lunchbox this week, because I’m not the sort of mother who would EVER deign to chuck in a fun size Milky Way!’

Really, I want to tell myself to fuck off sometimes! (And on the occasions my kid does get a Milky Way in her lunchbox she couldn’t be happier.)

As someone who does indeed love food, loves to cook and loves to share (online and IRL) my creations, I understand the allure of getting excited at asparagus season and only buying and cooking it at that time of year. But expecting everyone else to do that and judging those who don’t is pretty crappy. I know I’ve been guilty of it – if not explicitly, at least implicitly.

I’ve heard myself talk about how easy, quick and cheap it is to throw together soup, and how there is no need to do a fast-food run, because why would you need to when tossing together some onion, garlic, veggies out of the fridge, a couple of chicken legs and some small pasta (obviously in a Le Creuset pot because of course I am also wanky when it comes to cookware) and then sprinkling parsley on top and serving up with some crusty bread? 

Man, there are a lot of assumptions there (even if we take out the need for heavy French cast-iron cookware). There is the assumption of people having those things in the house, and the know-how of just how to throw it all together. There’s an assumption that people want to make soup. There’s an assumption that people want to eat it. 

It doesn’t sit right – and is also all shades of hypocritical of me to be this way – when you think about how very vocal I’ve been rallying against sectors of the community who like to badger people with diabetes about not eating carbs (or whatever other militant food rules they have), and criticise people who choose to eat in different ways. 

It is all very well to tell people to eat fresh, grow your own where possible, shop at farmers’ markets, eat only what is in season, consider food miles, shop local, buy good quality and make everything from scratch. And then to demand that if people absolutely must venture into a supermarket, the rule is they must only be allowed to show on the perimeter – where the fresh foods live, while also banging on about how processed foods, ready-made meals, pre chopped fruit and vegetables, frozen and tinned foods are inferior and if you are truly treating your body like a temple, you wouldn’t go near it.

I’m tired just typing that. And it’s so freaking ableist, privileged and full of presumptions to consider that this is the only way to think about food.

There is nothing wrong with buying prepared food – whether it’s prepared food for babies, kids, or grownups. Prepared meals are just as valid an option as meals made from scratch. Prepared cakes work just as well for a celebration as one that has been baked in your oven. Packet cakes and biscuits are a shortcut that make things easier. Some people may prefer the taste of pre-prepared foods, which is as good a reason as any for deciding what and how to eat. 

There is nothing wrong with purchasing pre-chopped fruit or vegetables. They are still fruit and vegetables, and a fabulous alterative for people who are in a hurry, really don’t enjoy chopping up foods, or find it difficult to wield a knife. Or for people who just grab a bag because that’s what they want to do! 

There is nothing wrong with using frozen or canned vegetables rather than fresh. They are convenient, more readily available in rural and remote areas, often more affordable, super easy to whip up, and full of nutrients. Sure, it looks gorgeous on an Instagram feed to show freshly picked tomatoes from the plant growing in your front garden, and then offer a step-by-step photo guide of how you turned it into organic-vine-grown-homemade-truss-tomato soup, but some Campbell’s tomato soup also works! And, hey, it was good enough for Andy Warhol…

For the record, it’s not just social media over-sharers who need to be reminded to check our privilege. Often, dietary advice from health professionals and health organisations seems to think that everyone has a community garden over the back fence, and the time, interest, and know-how to not only plant year-round crops, but also then prepare healthful meals with it. Processed foods are usually an afterthought and deemed not as good for you. Assumptions are made about cooking capabilities, cooking utensils, time and all the other factors that go into working out what to put on the table for dinner. 

We need to move away from the utopian world that looks through the lens of everyone having gone through a school with a Stephanie Alexander Kitchen Garden program, a dedicated cook at home who is able to do ‘All The Right Food Things’, a budget that never needs to consider the cost of food, and the idea that everyone is harbouring secret ambitions to win MasterChef, and living with grand delusions of Nigella Lawson (hand raised right now). Because that’s not the reality for most people. 

Not a Warhol, but a stunning Appleton.

(Click on image for details of artist, Appleton, who kindly gifted us this artwork when we were hanging out in his New York studio in Jan 2020. We’re so lucky it’s hanging in our kitchen.)

 

 

For more information (all Australian sites):

http://www.ruok.org.au

http://www.beyondblue.org.au

http://www.lifeline.org.au

Some people seem to think that if you are interested in DIY Diabetes you must be looping.

This is not the truth. At all. In fact, a lot of people who are really interested in the whole movement have made a very conscious and well-informed decision to not DIY themselves. There are a multitude of reasons for this, but they can all be filed under the banner of ‘My Diabetes; My Rules’.

(Let’s get out of the way the critically important point that for most people, the concept of DIYAPS is not even an option. When struggling to access the most basic of diabetes technology and drugs, the very idea of building a DIY system to automate insulin delivery does not even figure into one’s diabetes management plans. However, I am talking about people who are fortunate to have the choice to loop or not to loop, and choose not to.)

Last week, I was invited by the Danish Diabetes Academy to speak at an event they were running about the Diabetes Do It Yourself movement. I’d been asked to speak about how and why Diabetes Australia had become the first consumer/patient organisation to develop and launch a position statement on DIY technology solutions. More on that another time.

The day opened with a presentation from Bastian Hauck, and he could not have set the scene better. To start with, he challenged everyone’s idea of just what technology is. He showed his brand of tech: a reusable insulin pen, a glucose meter, and an explanation that he usually uses CGM with it. No pump. No automation. No integrated system. No DIYAPS.

Does this make him a luddite or anti-tech? Does this mean that he has no interest in or idea of DIYAPS, or that he is suspicious and opposes it? Of course not. It simply means that at this point in time, he has worked out what works best for him and his diabetes, and that’s what he is using. Sounds pretty sensible to me.

Bastian also drew everyone’s attention to the point I made in the first paragraph of this post: pens (or syringes) and a BGL meter are what the vast, vast majority of people are using to manage their diabetes. The people in the room and those involved in DIY tech are a minority. A very privileged minority. And we must never forget that.

I actually think it’s great when we have people actively involved in the #WeAreNotWaiting world using a variety of management solutions because it means we don’t get caught up only hearing the perspectives and opinions of those who are looping. We can be an evangelical lot, and remembering that there are others doing perfectly well (and are perfectly happy) doing what they have been doing is important.

What we don’t need is people who really don’t understand the systems claiming the reasons they steer clear is because DIY systems are unregulated and therefore unsafe, or other motives that are pretty damn inaccurate. No one needs to justify why they have or have not adopted certain diabetes management options, but it would be good if they didn’t point to reasons that are not especially truthful, perpetuating claims that only serve to scare people. (And anyone who is using this last weekend’s FDA warning about DIY systems to claim that their concerns are warranted should read this post from Katie DiSimone for some context.)

For every Dana Lewis (who gave an overview of her own story, and a typically brilliant explanation of just what OpenAPS is and how it came about) there are others who simply are not interested. And that is perfectly fine!

One thing that both Bastian and Dana reminded everyone is this: ALL diabetes is DIY. It is 24/7 and we do it ourselves for day to day. Call it what you want – DIY or off-label diabetes – it’s just diabetes. And we have no choice other than doing it ourselves.

Bastian and Dana

 

DISCLOSURE

The Danish Diabetes Academy invited me to speak at the Diabetes – Do It Yourself conference in Copenhagen. They covered by (premium economy) flight home from Copenhagen and three nights’ accommodation and expenses.

Schiphol International Airport is one of the busiest transit hubs in Europe. The train station and airport merge into each other and there are people everywhere.

It’s bright and early and I got off the train from Nijmegen where I’d been for the HypoRESOLVE AGM. A 6.28am train does not make me a happy lass, so I was dreading negotiating an airport that is quite manic before 9am on not enough coffee.

Dropping off my suitcase was easy and I had a boarding pass. Security was the only thing stopping me from sitting down and having more coffee. Standing in line, I started the familiar dance of getting myself ready to pass through the security area. I pulled my laptop from my bag, removed my Apple Watch and medical ID bracelet; my leather jacket came off and I unwound my scarf from my neck.

‘Good morning,‘ I said to the person directing the traffic to the different gates. ‘I can’t go through the full body scanner – I am wearing some diabetes devices that can’t go through. I think I’ll need a pat down.’

‘Not a problem,’ he said. ‘I’ll organise someone. You can have a full massage!’ He smiled cheekily at me.

‘Great,‘ I said. ‘A manicure and pedi would be wonderful too.’ 

He laughed and directed me through to the woman waiting to do my pat down.

I greeted her, still smiling. ‘I’m wearing medical devices. I have one on my arm,’ I signalled to my Dexcom. ‘And two here.’ I pointed to where my pump and RileyLink were comfortably housed in my bra.

She started to pat down my arm. ‘I can lift my sleeve,’ I said. ‘It’s a glucose monitor.’

‘Oh,’ she said, stopping for a minute. ‘You have diabetes?’

‘Yes, I do,’ I said.

‘So does my son. Type 1. He was seven when he was diagnosed. He’s eighteen now.’

‘I have type 1 too.’

‘Do you need to see my insulin pump?’ I asked as she resumed patting me down.

‘No – it’s fine,’ she said. ‘My son doesn’t use a pump. He’s a teenager. Diabetes isn’t the most important thing to him.’

‘It’s not to me either,’ I smiled at her. ‘It’s not all that much fun.’

I looked over to my travel companions who were making their way through security.

‘My friends over there also have type 1,’ I said. ‘Having friends who understand helps a lot.’

‘Like a diabetes club,’ she said. She had finished now and we were just standing there chatting.

‘Not a very cool one, and not really one that I want to be part of. But yes,’ I looked carefully at her. She had that look that I see anytime I connect with someone from our diabetes world. A bit of sadness; interest in talking to others who know, and hope. Always hope. ‘I hope your son is doing well.’

‘He is. He has some friends with diabetes. It does help.’

We said good bye and I was joined by my band of friends. And we went to get more coffee.

DISCLOSURE

My flight to Amsterdam and train travel to and from Nijmegen have been covered by the HypoRESOLVE project.

I’m in beautiful Nijmegen in The Netherlands for a couple of days for the AGM of the HypoRESOLVE project. We’re in the midst of a very busy time of meetings, updates, sessions about data and statistics (my jet lagged brain is doing its best to keep up!) and discussions about just how significant hypoglycaemia is to people living with diabetes.

Here’s what I wrote after the kick off meeting twelve months ago. The project has made lots of progress and there will be more about that as it all comes to hand. But in the meantime, here’s what happened back in May last year in Copenhagen when the project was launched. (My disclosures remain as per the end of this post.)


I’m back from a very busy week in London and Copenhagen. I arrived back in the door at home exactly two minutes after Harry and Meghan got hitched, so I missed the whole happy occasion. If only we had some sort of magical way to see photos and videos and relive beautiful experiences like that. Oh well, never mind.

The main reason for my trip was for the kick-off meeting for Hypo-RESOLVE, a new four-year project focusing on better understanding hypoglycaemia. I’m there as part of the Patient Advisory Committee (PAC), which is made up of advocates from across Europe. Obviously, it is now legislated that an Australian also be included in any European diabetes advocate activities. I believe it’s called the Eurovision Law.

The project is made up of eight work packages, each led and staffed by leading European diabetes researchers and clinicians, and after seeing just who was going to be in the room, I suddenly was struck down by the worst case of Imposter Syndrome I have ever experienced. This didn’t get any better when I was told that the presentation I had been asked to give was not only for the PAC. No – it would be in front of all eighty project participants. I looked at the list of who I would be standing up and speaking to, and cursed the meme- and photo-filled presentation I had prepared, wondering if I could pretend to understand statistics and graphs, and add some to my slide deck to at least try to sound smart.

I decided to stick with what I knew (memes, cartoons, photos of weird hypo tales), and left the slide deck as it was, hoping against all hope that I would manage to keep myself nice, and sound as though I understood what I was speaking about.

I was asked to give a talk about the real life experiences of hypoglycaemia. Fortunately I have kept a pretty good record of the literal lows of my diabetes (which, incidentally, was the title of my talk). Thanks to the search function on Diabetogenic, I was able to easily pull together a number of stories about the lows I’ve had. This proved to be more useful than I realised because these days, lows are few and far between. Since I started Looping, I’ve not had the sort of low that has made me want to write about it and try to analyse what it all means in my diabetes life. In fact, I’ve not had any lows that have required anything more than a mouthful of juice or a couple of fruit pastilles to treat.

Reading back through my blog posts was actually really quite confronting, and I found myself getting emotional as I read details of terribly scary lows and how they had impacted on me – in the moment, and in the days following. As I read, I remembered the anxieties I felt about something happening while low that would seriously affect my family.

I’ve not asked them, but I wonder if the fact that I have so few hypos these days makes Aaron and the kidlet feel calmer about my diabetes. They still see me sucking on a juice box every now and then, but it is done without urgency, and without the look in my eyes that betrays the calm I used to try (and fail) to convey.

In my talk, I really tried to express just how significant hypos have been in my life with diabetes. I tried to explain that even once a low is ‘fixed’ there are often residual effects – effects far beyond just trying to work out what my glucose levels would do after playing the how-low-can-you-go-hypo-limbo.

I spoke about how the emotional fallout after a nasty hypo can be crippling, leading me to second guess every diabetes decision I made, wondering what I had done to cause the low in the first place – because that is the ongoing narrative of diabetes….we did something wrong to cause the hypo (or the complication, or the high, or the technology failure). And I really tried to explain how sometimes there are no answers, no matter how hard we look, or how desperate we are to find something to blame.

Of course I spoke about the language of lows and how the words we use impact on the way that hypos are considered. There is no doubt that ‘severe’ hypos are serious and need urgent attention and investigation, but so-called ‘mild’ hypos can be just as burdensome.

Obviously, everyone’s hypo stories will be different and I took great pains to clarify that I was speaking of my own experiences only. In the past, hypos have terrified, paralysed and alarmed me. I was afraid to sleep, I was afraid of lows when awake. I was scared I would have a particularly nasty low around my daughter and scare her. I am fortunate that my deliberate non-compliance has resulted in almost no lows, and feeling safer that I have ever felt before. My fear of hypoglycaemia is manageable these days, yet I don’t take for granted that it will always be like this. I still carry hypo food around with me – there is no point tempting the hypo gods by not being prepared!

I’ll be writing more about Hypo-RESOLVE in coming days. I’m so pleased to be involved in such an exciting and interesting project; I’m honoured to have been selected for the PAC. I’m beyond thrilled that PWD are included in the DNA of the project – right from the kick-off, not brought in at the last minute for comment when all the decisions have been made. And mostly, I am grateful that hypoglycaemia is being given the attention it deserves. I honesty hope that one day no one ever needs to feel the panic and fear that so many of us have come to know.

Kicking off the kick-off meeting

MORE:

You can read all about Hypo-RESOLVE in the  Innovative Medicines Initiative media release from last week announcing the launch of the project.

DISCLOSURE

My flights and accommodation to attend the Hypo-RESOLVE kick off meetings were funded from within the project. PAC members are volunteers on this project.

I have some illuminating discussions with healthcare professionals. After I’ve had an in-depth conversation, I find myself going over things they have told me and discover that I have always learnt something new about what it means to work in a system that is, in many ways, broken. I learn how their approach to healthcare changes year by year as they try to do their best for the people they see each day. And I realise that I never, ever could do their job.

Other times, I shake my head a little because I wonder how their understanding of the day-to-day challenges of living with a chronic health condition is so far removed from reality. In these cases it’s almost as though we are speaking different languages.

Recently I spoke to a group of HCPs about those differences. I focused on how we manage to fit diabetes into our busy lives in ways that HCPs never can imagine and how the neat text book description of life with diabetes is very different from the mess that we are trying to tame each day. I spoke about how what they say can be read in a multitude of different ways by those of us on the other side of the consultation, and to think about words carefully. And I spoke about how although some education of HCPs about diabetes suggests that there is a one size that somehow fits us all, the truth is that we require our education to take into consideration every size and shape possible and for it to be delivered accordingly.

A doctor came up to me afterwards and thanked me for my talk. ‘Thanks for making me think differently about some things,’ she said. I loved that she said that, and I told her so. ‘Actually, that’s always one thing that I hope to get when I hear someone speak about diabetes – a new perspective or way of thinking about something that I think I have all worked out.’

We chatted a little about what she’d heard that had surprised her and would she would now be thinking about in other ways. I may have high fived her when she said that she would now be taking a lot more care with the language that she uses. ‘I had no idea that what I was saying had such stigma attached. I honestly thought I was saying the right things. I never meant for people to feel blamed, but I can see now how I could have come across that way.’

That’s been one of the challenges of the #LanguageMatters movement in diabetes. As we’ve tried to bring HCPs along for the ride, we’ve had to do it in a way that doesn’t make it sound like we are berating them. I do and will continue to call out language that impacts on PWD negatively because it does matter. Language has the power to make us feel like we can take on diabetes or be defeated by it; it can make us feel like we are doing all we can and that is enough, or that we are failing and will never do enough. Again, for those down the back – language does matter. But I truly have never believed that HCPs use language with any malice or intent of harm. It’s often just because they repeat the words and phrases that have always been used.

I explained this to the doctor and we spoke about how to get the message across in a way that highlights and promotes collaboration. After we’d been speaking for about 10 minutes, she said ‘I have a question for you,’ I nodded, eager to hear what she wanted to ask. ‘What’s the best kept secret in diabetes?’

I was startled. What an interesting – and frankly brilliant – question. I’d never been asked that before and I wanted to think about it a lot. Poor woman – I’m sure that she just wanted some sort of quippy response and to be done with it so we could go home and eat dinner.

‘Wow!’ I started, excitedly. ‘I love this. Are there any secrets to diabetes?’ I started a checklist, going through some ideas.  ‘Is it peer support? For some reason, a lot of people don’t know just how widely available this is. Or maybe it’s how people can drive their own healthcare by setting the agenda. I frequently have people tell me that they just do what their doctor tells them (or rather, say they will) because they didn’t realise that healthcare could be an open and joint dialogue. In diabetes, maybe it’s all the clandestine DIY stuff that is going on which is so apparent to those of us who play on Facebook and Twitter, but maybe not to those who are not online as much. I know it’s NOT cinnamon. Actually – maybe it’s the whole thing about how when living with diabetes, or other chronic condition, our mental health is rarely taken into account, so perhaps understanding that and being referred to relevant services is the secret. It happens to so few of us…’

I stopped, because I could sense that there was so much I wanted to say, but I truly didn’t have an answer. ‘I don’t really know,’ I sighed. ‘I wish I did. I wish there was one…’

We said our good byes and I started to walk away before the doctor called after me: ‘You know what the best kept secret in diabetes is?’

I spun around. ‘What?’ I asked. I admit that I was hoping for a key that was going to unlock the mysteries of diabetes and suddenly make it a lot easier to live with.

‘You,’ she said. ‘And others like you. If only doctors like me took the time to listen to you all we would know a lot more and probably do a much better job.’

I smiled at her. ‘We’re not really a secret,’ I said. ‘We’re actually quite out there. You’re just not looking in the right places. Or asking the right questions.’

I gave her a little wave and left the room.

Under a month to Valentine’s Day and that means the Spare A Rose, Save a Child campaign is kicking off soon. #SpareARose is a DOC-led initiative encouraging people to make a small – or large – donation to support Life for a Child.

It’s really simple. In fact, as easy as…There will be more – lots more – in coming weeks, so stay tuned.

(By the way: the website you need for more info or to make a donation is THIS ONE.)

I wrote this post 2 years ago to commemorate an important date in diabetes history: the administration of the first insulin injection. Today, it’s 97 years since Leonard Thompson was given this life saving drug; the drug that keeps me and millions of others around the world alive each day.

And yet, 97 years later, insulin is not accessible to everyone who needs it and people continue to die because they cannot afford the same drug that those of us in Australia can easily and affordable find at any local pharmacy.

So today, as I remember Leonard and the significance of this date and reshare this (slightly edited) post, I’ll be making a donation to Life for a Child. Because no one – no one – should die because they cannot access a drug that has been around for 97 years.

___________________________

On 11 January in 1922, a 14-year-old boy in Toronto was given the first insulin injection to treat diabetes. His name was Leonard Thompson, and he lived for another 13 years, before dying of pneumonia when he was 27 years old.

Before he was given insulin for the first time, Leonard was on the only treatment available at the time for those diagnosed with type 1 diabetes. He was on a starvation diet, and he was close to death, drifting in and out of a coma because of diabetes-related ketoacidosis.

There are dates each year that trigger reminder lessons in the discovery of insulin. On those days, I say a silent thank you to Banting and Best for their work, grateful to them for my life and I peek into my refrigerator at the vials of insulin within easy reach for when they are needed.

But I also feel a great sense of sadness and frustration, because today, ninety-seven years after Leonard Thompson was given his first insulin injection, this miracle drug is still inaccessible to so many people with diabetes. And people are dying, suffering in the way that Leonard was before he was given the drug for the first time.

Yes, I said ‘suffering’. And I don’t use that word. I don’t suffer from diabetes – I live with it. But make no mistake, someone who cannot access insulin and is dying from diabetic ketoacidosis is suffering. They are in pain; their body is in distress. They are dying.

The playing field is so un-level and that is simply not fair. So if you are able to – if you are one of the fortunate ones with insulin in your fridge, please do consider donating to those who are not.

Around Valentine’s Day each year, Spare a Rose suggests sending 11 instead of 12 roses. The AUD$6 saved provides insulin for a month to child with diabetes through the IDF’s Life for a Child program.

Insulin for Life Global needs donations to fund transport costs for delivering insulin to those most in need. AUD$12.50 will cover the cost of sending two weeks’ worth of insulin.

(Click image for source)
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