Yesterday, my little vlog touching on how I was feeling about re-entry into some aspects of real life, and the incremental reduction of restrictions was just a few thoughts that I wanted to talk about.

Today, as we’re learning and seeing more about what we have in store for the coming weeks, that low-level anxiety I mused about, has somehow manifested into a monster.

I think that my overall nervousness and anxiety about COVID-19 has been managed and manageable (albeit with an occasional meltdown). Perhaps that is because I started limiting my interactions early, working from home before lockdowns were announced. I was ahead of the curve (bloody curves – it’s all about curves!) when it came to minimising contact and outings. In fact, after I got back from Madrid back at the end of February, social engagements and general being out and about were really quite scarce.

This sense of control seemed to really help me. I felt confident that I was doing all I could to reduce my risk significantly. And then, once the restrictions were announced, it wasn’t just up to me to control my environment – it was being controlled for me. I didn’t need to worry so much about what Aaron and the kid were being exposed to because they were home. My limited exposure became theirs, and that just made me feel a whole lot better.

We didn’t completely isolate. But we made very deliberate choices about what we would do. As I mentioned in yesterday’s vlog, our local café has a service window to order and collect coffee. I felt safe getting my daily caffeine hit because I could remain safely distant from others and not need to touch door handles (or anything else other than a takeaway coffee cup) or breathe the same indoor air as strangers! When that café had a couple of well-deserved days off for their staff, we went to another one nearby. Once. I walked in and there were too many people inside, standing too close, talking too much. I ordered and waited for my coffee outside (why wasn’t everyone doing that?). And didn’t return.

Visits to the supermarket have been sporadic with my spidey senses on high alert. I’m so conscious of how close other people are, what they have touched and what I touched, what they are doing. I get in and out as fast as I can.

This has all become the norm and I don’t know how to move forward. I don’t know what the baby steps look like that would make me feel comfortable. We still have another two weeks before schools starts to return and our little cocoon is compromised by things outside our control. Yesterday, the kid asked me if it would be okay for her to go back to school once that was announced and would I be concerned because

I really hate feeling vulnerable. And that is exactly how I feel right now.

And torn. I feel torn. I miss my family and friends. I am desperate to be able to get back out and be around them and just not worry. But equally… I don’t know where they’ve been! I don’t trust people – which is a terrible thing to say…

So, what is it? Why do I feel this way? I know I’m not alone. I’ve spoken to some of my friends with diabetes from across the globe and many are saying the same thing. Maybe it’s all that talk that was so, so prominent at the beginning of the outbreak, and has continued as a whisper throughout it about high risk populations. While it made me feel overwhelmed at the beginning, now it is actually scaring me. That vulnerability is completely out of my control and combined with less control over my environment, I feel as though I am spiralling.

I know that I can’t stay all cosied up in my home forever more. I know that my family needs to get back out there; that I need to get back out there. But it is going to take a lot before I feel ready. And even more before I feel comfortable.

Actual insight into my thought stream right now from this The New Yorker cartoon. (Click for source)

With restrictions starting to ease – albeit, and thankfully, slowly – how is everyone feeling? I know that I’m not all that sure I’m ready…

Earlier in the week, I woke to a heap of messages highlighting an incident in the UK where a female MP had been told to watch her tone by a male MP. I muttered something about strident women and moved on. ‘Not my monkeys, not my circus’ has become a useful mantra in the time of COVID-19!

Then, later on the same day, I was pointed in the direction of a wonderful (???) social experiment where a bloke on Twitter had changed his avatar to that of a woman (or rather, as he said, a ‘lady avatar’) and could confidently report back to the world that he was treated very differently, and dealt with jerks, annoyances and microaggressions.  And that he received dick picks, which he found violating.

I sighed. ‘Another fucking monkey’, I thought. But this is a circus of which I am very much a part!

Despite daily, actually, hourly if not more frequent, comments on Twitter where women emphasise just how shoddily we get treated by men, it takes a man to pretend for a short period to be a woman to prove (to him, and apparently others) that what we are saying is true.

My response to his experiment was this:

Of course, this little ‘investigation’ (and I use that term loosely) made me immediately think of all the times HCPs have participated in ridiculous simulations of what it is like to be a ‘patient’ so that they can truly understand how difficult it can be, instead of just simply listening to what we say about it. You don’t need to sit in a hypo simulator to appreciate that hypos suck. Or to wear an insulin pump for a few days to know they can be a pain in the arse to wear.

No, you just need to listen to people with diabetes. We can tell you how much hypos suck in a million different ways, using words, images, or interpretive dance. There are poems about it. There are TED talks. There are pages and pages and pages written about it. You can check out all those things. Or just us ask! And then listen.

And also, what gets missed from these short-term experiments is that they are so damn superficial. They barely scratch the surface of what they are pretending to be. The bloke on Twitter had a couple of days of tweets coming his way that he found annoying. But he didn’t feel the threat or fear that women feel when we are being intimidated online. And at the end of his little game, he could go back to being himself. The same goes for anyone pretending to ‘do diabetes’ for a minute of two.

To our social researcher (another term I am using loosely) on Twitter: next time, just listen and believe the women who are living, and talking about this crap every single day. I’d urge HCPs to do the same thing when it comes to listening and believing the people they are working to help.

Oh, and to the tosser who tone policed his colleague: just don’t do that. Ever.

One of the things the diabetes community does best is come together in tough times, and this new initiative from JDRF and Beyond Type 1 is a stellar example of how it can be done. JDRF and Beyond Type 1 formed an alliance last year, and have put together a terrific site providing important, up-to-date information and advise about coronavirus and diabetes.

But this is initiative goes way beyond just two diabetes organisations.  In fact, over one hundred diabetes organisations, charities, and companies are helping to spread the word and share the information via their networks

Charities and diabetes organisations from Australia, USA, Canada, Italy, Chile, Portugal, Mexico, Bulgaria, Germany, India, Cyprus, New Zealand, Spain and other countries too are represented. I’m thrilled that Diabetes Australia is one of the community partners on the ever-growing list!

International organisations such as Life for a Child, ISPAD, IDF, NCD Alliance as well as industry partners have also rallied together, joining the other groups. This is big. Big! Huge!

The information on this new site is simple and clear. And it’s available in English, Spanish and Portuguese.

Plus, the advice is all practical and sensible. We might, in ordinary times, think that practical and sensible is boring, but I know it’s something I’m craving at the moment. And I’m also craving information that cuts through all the overwhelming noise and tells me exactly what I need to know.

This site does that.

Massive, massive kudos to JDRF and Beyond Type 1 for getting this initiative up and running. And well done to all the organisations who have happily supported and shared it. This isn’t about ownership and needing to be the holders of all information. It’s about ensuring people with diabetes have access to what we need to know, and what can help and support us. That’s only a good thing, right?

Click on the image below to be taken straight to the site. And stay safe. That’s really what we all want and are hoping for.

DISCLOSURE

I am employed by Diabetes Australia. I am on the Beyond Type 1 Leadership Council.

I wrote this piece six years ago today when one of the most well-known, and one of my whole family’s long-time favourites – turned 28. Today, Marios is still going strong and has hit thirty-four years of operation. We are still frequent visitors to this cafe. It has become our kid’s choice for weekend brunch – she and I have a standing date their every second Saturday when Aaron is at a rehearsal. And at least one weekend day will see the three of us eating together. And drinking coffee. Yes, Marios is where my kid together with one of the cafe’s namesakes, ganged up on me and broke my ‘no coffee until you are eighteen’ rule, and started drinking coffee when she was just a teenager. 

Marios at home.

During this time of COVID-19 we have been desperately missing Marios. Even though it’s only ten minutes from where we live, it’s outside the zone of where we have comfortably been travelling for our daily caffeine hits.  But last weekend, we decided we needed a meal of pasta from there – the ultimate in comfort food – so called in an order and went to pick it up. I teared up as I walked into the cafe and was greeted by the gorgeous staff. It had been six weeks since I had last walked in that door and I can’t remember another time (unless travelling) where I have gone that long without paying them a visit. 

As have many other small business, Marios has adapted to the new rules about dining. Takeaway and delivery is available, and they have turned the front of the store into a provedore with tables of dried and fresh (made in house) pasta, sauces, jams, coffee and fresh fruit and veggies. I loaded up a bag with the pantry staples as I chatted with the staff waiting for my pasta to be ready. 

Marios will always – always – have a special place in our heart. And will be back as soon as this is over, making up for lost time. But until then, we’ll get takeaway and support them as we can. I’m sharing this post today (with a couple of edits) because it feels the only thing to do. 

With one of the Marios a couple of weeks ago when I picked up dinner.


Today, my all-time favourite café turns 28 34 years old. Marios café (named for its two owners, Mario Maccarone and Mario De Pasquale, hence no apostrophe) is celebrating its birthday and remains the ultimate in Melbourne café culture. It’s unapologetic (still doesn’t serve skim milk, although did succumb a couple of years ago and started to offer soy) and reliable (never had a bad coffee!).

I’ve been going to Marios for pretty much all of its 28 34 years – first with my parents and then with friends. Once I left school, meeting up with people at Marios was the epitome of cool! Great jazz on the stereo, a gorgeous changing art display showcasing local talent, and the best coffee in Melbourne. Plus tablecloths on the tables, smartly dressed waiters and breakfast served all day. There have been many times that I’ve ordered scrambled eggs or a blueberry bagel at 10pm!

Back in my uni days, it was the location for many first dates and I could always tell if there would be a second date by whether or not the guy knew of Marios when I suggested we meet there. Aaron and I had our first date there, eating cheesecake late at night after seeing a movie. He knew about Marios; there was a second date! In any relationship break up in the division of cafes and pubs and places we’d hung out, I always got Marios!

Marios is where I take overseas friends when I want them to have a truly Melbourne café experience. DOC friends from home and abroad have been taken there and just a couple months ago, a group of us got together to catch up. It’s where I meet up with friends who have moved overseas when they come home for a visit. My beautiful friend Shannon who moved from Melbourne to Hong Kong and then the UK over 15 years ago and I have a standing date any time she’s in town so she can get a fix of Marios lasagne! Recently, I caught up with a long-lost friend and there was no doubt about where we would meet.

There have been many memorable visits to Marios including the night before my daughter was born, where I checked my watch every ten minutes, counting down until the time I would meet her. The day we brought her home from hospital, we took a pit stop to Marios to show her off to the waiters and introduce her to the place she would be spending a lot of time.

I’ve laughed, cried, and had some of the most serious conversations of my life in Marios. I’ve said goodbye to friends and welcomed them back into my life. I’ve met up with people for difficult, heartbreaking chats because it’s always felt safe.

I can still remember my first trip to Marios after I was diagnosed with diabetes. It was only a week or two later and it was the first time I was eating out. It was where I did my first ‘public injection’ and I can remember my heart racing as I pulled my insulin pen out of my bag and tried to jab my stomach secretly. I was sure everyone was watching me, judging me, waiting to jump on me and tell me to put it away. No one noticed and if they did, said nothing. I searched the menu for food that the ridiculously old-school dietitian I had seen would approve of and I wondered if it would be okay for me have chocolate sprinkled on top of my cappuccino. I fought back tears as I asked the waiter for sugar substitute and then explained why I was asking. My coffee was on the house that day.

Now, I don’t hide away my BGL checks or pulling my pump out from under my clothes when I am out, and it was at Marios that I realised that I had nothing to be ashamed about when it came to ‘public displays of diabetes’. Marios normalised eating out with diabetes – the new reality of my life.

I felt safe there. I knew I would not be questioned. I knew that I would still be the old me there and Marios would never change. It felt like it always did. It felt like home.

Dear COVID-19,

Well, aren’t you just the flavour of the month?

It’s been interesting to see some other health issue get all the attention for a bit. Suddenly the conspiracy theorists and alternative medicine wellness gurus are focused on you and that’s meant that some of the pressure has been taken off me. I don’t think I’ve heard one ‘<insert weird root vegetable> cures diabetes’ message in weeks. I’m almost missing it.

I’ve been watching as the usual suspects come out in force, touting all sorts of miracle cures to send you on your way. I’ve rolled my eyes as a veritable feast of different foods, drugs, sunshine and blowing hot air in your face have been offered up as THE cure. And lemon water. Because you know that cures everything, right? Oh, and perineum sunning. Yes, really. (You may not want to look that one up…)

But along with the shaking my head at these ideas, I’ve despaired as healthcare professionals, researchers and public health campaigners have been dragged away from their important and necessary work to have to respond to idiots like Pete Evans and some footballer’s wife and everyone’s Great Aunt Maude. And the US President.

So, who else has been hogging the spotlight during this time of isolation?

The tone deaf have been making a lot of noise, insisting that people embrace this new found simpler way of life, and start an organic no dig herb garden, salute the sun every morning (I think this is different to the perineum sunning, but I’m not sure), begin roasting coffee beans for a real authentic South American caffeine hit, make ricotta from scratch, and train for a marathon by running around your kitchen table, all while starting a cottage business making candles out of the wax collected from the bees you’re now keeping on the roof. This, of course, ignores the fact that most people are struggling to find basic food staples, or can’t afford them if they do find them because they’ve found their hours at work significantly cut. The idea of doing anything that involves getting off the couch is too much for lots of people. And the only reason anyone would be on their roof is because it’s the only place to get away from the family and the dog.

Really, it’s all very well to photograph yourself picking rosemary from the carefully cultivated hedge that surrounds the veggie patch on the perfectly lit balcony of your inner-city apartment, to throw over the home delivered, grass-fed, organic lamb you’ve been slow roasting all day as you’ve worked from your perfectly curated home office, complete with fresh flowers and candles burning. But to suggest that everyone do the same because, really, it’s fresh, quick and easy? Now might be a really good time to check that extreme privilege you have on show on your constantly updated grid.

And the anti-vaxxers have been getting their 15 minutes of fame again. They started by contradicting the stay home rules by suggesting they all hang out together in parks, with their kids. And then shouting ‘in the pockets of big pharma’ to any scientist offering decent data and evidence on how to stay safe. They’ve already started their usual bullshit about any potential future vaccine being made of mercury, asbestos, pig poo, the tears of dictators and waste from Chernobyl and how they’ll be avoiding getting the vaccine like the plague. (Which they won’t get anyway because their immune systems have been super-boosted by lemon water and holding measles parties.)

Sure, COVID-19, you may be new, but I’ve seen all this before. The cures, the anti-vaxxers, the Instagram influencers – they’ve been around for years. They’ve just turned their attention to you now. They’re probably grateful that you’ve given them some new material. I mean, how many photos can the influencer of the moment share of the latest green smoothie or teatox craze, promising that this is the way to stop post-meal insulin spikes (or something)? We were all getting a little tired of that garbage.

Enjoy your moment in the sun (again, I’m not talking perineum sunning), because eventually, there will be a vaccine. That’s right: dictators will have cried enough tears, or whatever the active ingredient will be, and your time will be over. But don’t worry. I’ll still be here, waiting for a Kardashian (or US President) to come up with some other harebrained idea about what can cure me.

Best,

Diabetes

Last Friday night, I sat around with three other women with type 1 diabetes and we had a chat. When I say ‘sat around’ I mean Zoomed, but other than the fact that we were seeing each other through computer screens, it could have been any other time I was meeting up with women with diabetes for a casual chat.

The reason for this gathering was so that I could be interviewed for a new Australian podcast. Mamabetes was launched just last week, and is a project by three amazing Aussie advocates, Ashleigh, Rachel and Carleigh, all who are living with type 1 diabetes.

I was a little surprised when they reached out to me. My kid is fifteen and my experience of pregnancy and diabetes is a little old now. But they wanted to speak with me about stigma and language, and how that can impact on all sorts of diabetes experiences – including pregnancy.

I’d never met any of the women before and other than a short conversation with Ashleigh a couple of days before, the first time we chatted was when Zoom brought their gorgeous faces and happy smiles into my study at home. I’d been sent a brief outline of what they hoped to get from our discussion and a few broad questions for me to consider before we got started. We were going to chat for about fifteen minutes and see where our conversation took us.

I’m sure that we could have stuck to that timeframe if we really wanted, and to the questions I’d been offered as a guide. But an hour later, we were still chatting, and we’d taken off on some wonderful tangents, as happens when people with shared interests and experiences come together.

The podcast episode with our chat dropped this morning and I’ve been listening to it in bits and pieces in between the Zoom existence so many of us seem to be living at the moment. We cover lots, so do have a listen! Click on the image below to go to the podcase, and the Mamabetes other socials are listed for you to follow along.

Asheigh, Rachel and Carleigh are creating something really important here, and providing women with diabetes a place to learn and connect – around an issue that is relevant and important to many. Thanks to these three dynamic women for doing this, and for inviting me to be a part of their second podcast episode.

Go follow…

Mamabetes on Twitter

Mambetes on Facebook

Mamabetes on Instagram

I know that the last thing anyone needs right now is someone else writing about what they have been eating, cooking and baking during lockdown. I think that my Instagram feed is about 75% banana bread at the moment, which is of no interest to be as I don’t like bananas. About 20% is sourdough starters, because suddenly everyone is an artisanal baker, ready to throw down a challenge to the likes of Lionel Poilâne. (Poilâne died in the early 2000s, so probably won’t rise to the challenge. There’s a bread pun in there…)

So, I feel that this post about food really isn’t necessary, except that even when not in lockdown, I spend a lot of time focussing on food. I like to blame my Italian family for it, but I think it’s just that I love everything food has to offer. From planning, shopping, prepping, cooking, serving up and then eating, the whole process is one that I love.

And so, I’m sharing some of my most recent baking and cooking efforts, mostly because I am a lazy baker and cook. By that I mean that I look for the simplest of recipes that will yield the most impressively delicious results. This means that those who I share my food with think that I am far more expert that I really am. I’m not ready to correct those misconceptions yet.

Baking

My current baking output is out of control at the moment. In normal, non-pandemic times, I bake cookies and biscuits every Sunday, so the kid has something sweet to take in her lunchbox and share with friends. I post pics of the end product (and a timelapse cooking video) on my socials with the hashtag #AndOnSundaysWeBake. Occasionally, I may bake something another day during the week.

All bets are off in the time of COVID-19 and so I needed a new hashtag: #AndOnEveryFuckingDayWeBake is far more accurate in these extraordinary times. The  neighbours have been getting deliveries on their doorsteps, and I’ve discovered small batch baking, or become super-efficient at halving recipes to make just enough for one morning tea, or after dinner treat.

I rarely follow recipes – I just make things up as I go along. But I’ve tried to find similar receipts along the way just in case you suddenly have a burning desire to get in the kitchen and create.

Amaretti

Literally a ten minute back up resulting in delicious and fancy biscuits. You can use any citrus or other flavouring. These ones were orange. Similar recipe can be found here.

Apple, cinnamon and walnut bread

Banana bread can go fuck itself, but give me a decent apple bread any time! Add cinnamon and you are halfway to curing your diabetes. And everyone knows that walnuts are a superfood (bullshit), so really, this loaf should be found in a fancy, overpriced health food café. Similar recipe can be found here.

Focaccia

I bake bread now. And this focaccia was sublime. I’ve made it a few times to serve with whatever soup I’ve had cooking on the stove all day. Similar recipe here.

Sparkly cupcakes

When your neighbours celebrate a special anniversary while in lockdown, it’s compulsory to make them cupcakes that sparkle in the sunlight. Nigella’s basic cupcake recipe never fails.

Brownies

And more from Nigella. Here, her emergency brownies can be knocked up, and out of the oven ready for you to eat in half an hour. Put the kettle on. Recipe here.

Cornflake biscuits

This is a pretty good pantry staple item recipe. All crunchy and crispy and downright delicious with an afternoon cuppa. Similar recipe here.

Anything citrus

If it’s got lemon, orange or lime in it, you can bet I want to make it.

I’m calling these biscotti all’arancia e cocciolato and they look rather impressive. But really, they’re just orange shortbread dipped in chocolate, but jeez they tasted great! Similar recipe here.

Did I mention I love lemon? This cake is a lemon loaf, with lemon syrup and then lemon drizzle because triple the lemon is always the best. Similar recipe here.

But possibly my favourite was this mandarin loaf which contains two whole mandarins thrown into the food processor for the most intense mandarin-y flavour and then more mandarin zest and juice in the icing. Similar recipe here (just replace the orange with mandarins).

Cooking

A combination of weather cooling down, the day getting darker earlier and the whole lockdown thing has meant that I’m looking for foods that are comforting, and take ages to cook, just sitting on the stove for hours for their flavours to develop.

Sauces

Last week’s Bolognese sauce cooked for over six hours and then was decanted into take away containers for the freezer, the neighbours and that night’s lasagne. Find whichever bolognese recipe works for you. Just don’t add zucchini.

And the end of Summer signalled the end of our basil plants, so I whizzed all that was left up and made pesto. Even with the warmer weather becoming a distant memory, the taste of summer will still get a few more outings with the little oil-topped jars of verdant pesto goodness waiting in the fridge. No recipe, but basically, just add basil, parmesan, toasted pine nuts, garlic, salt and olive oil to food processor and blitz. Great to stir through pasta and veggies, or dollop on top of soups.

Pies

Look, it’s true that I made shepherd’s pie last week just so I could sing ‘A Little Priest’ while prepping it. But it was so worth it, because it tasted great! I wouldn’t even know where to start with a recipe, but I just sweated off some finely diced carrot, onion, celery and garlic added some lamb mince, stock, and simmered the crap out of it for a while. I then added other veggies that needed to be used up (some peas and corn) and then poured into a casserole and topped with mashed potato. Make swirly patterns on the potato and then crumble some panko crumbs over the top. Bake until all crunchy and bubbly and it looks like this:

And chicken pie is a perennial favourite around here. A little maths humour on top because I’m a nerd. Find whatever chicken pie recipe works for you!

Pasta e ceci

My kid has never, not once, never eaten pasta out of a can in her life, and yet, decided to tell me that my pasta e ceci which used Rustichella d’Abruzza Anellini looked like SpaghettiOs. I don’t really care, because it was beyond delicious and everyone had seconds. The recipe was from Smitten Kitchen.

So that’s how I’ve been spending my time in the kitchen. No banana bread to be found (I didn’t include the zucchini bread I baked, but that was wonderfully delicious slathered with soft salted butter), but lots of other things. We are all going about our lockdown experiences in ways that work best for us.

For me, that involves being around food. I guess a big part of it is wanting to nourish myself and my family because it’s something that I can do, and I know I can do it well. There is so much other uncertainty, but when I start to cook and bake something, I know exactly how it is going to turn out.

I have noticed that my reaction to hearing or reading something upsetting and stressful is to walk into the kitchen, open the pantry and start to load ingredients on the kitchen bench. I plug in my firetruck red Kitchenaid stand mixer, and off I go. ‘Nothing bad ever comes from creaming together butter and sugar’, I think to myself, as I become hypnotised by the paddle spinning around. My breathing slows down and my anxiety levels diminish. And cake! Soon there will be cake.

 

This morning I woke up, got myself organised for the day, headed to our local for our morning takeaway coffee. And then I ripped out my pump line on a door handle.

Which, all in all, seems like a pretty damn appropriate way to celebrate my twenty-second diaversary.

One day I might get good at diabetes. But I guess today is not that day.

Other diaversary posts

Twenty-one

Twenty

Nineteen

Eighteen

Seventeen

Last week, I had a drive thru flu shot because that’s the COVID-19 world we live in now.

My GP practice has a super-efficient process set up that involved a phone consult with my doctor earlier in the day, a time locked in for me to get my shot and clear instructions for what to do once I arrived in the practice’s car park.

At the appointed time, my GP called to confirm that I was there, instructed me to expose my right upper arm, and came out to the car park to jab my arm. I waited in the car for 15 mins and then drove off. It was clear, easy and safe.

We’re coming into flu season in the southern hemisphere, and if you haven’t already, now is the time for everyone to make plans for how and when to get your vaccination.  In Australia, flu vaccines are free for all people with diabetes.

I know that some people are wondering why flu vaccine messages are still coming out so strongly even though we’re all meant to be physically isolating. It’s still important for a number of reasons. Obviously, we don’t want people to get COVID-19 AND the flu, and we don’t want people adding to the strain of what is likely to be an over-stressed health system.

Perhaps our physical distancing will have an impact on lowering numbers this year, (which would be great considering that over 300,000 people were diagnosed with the flu last year in Australia alone). But physical distancing is no guarantee that we won’t get infectious diseases such as COVID-19 or the seasonal flu. And that’s why we need to do all that we can to minimise the risk, and potential subsequent outcomes.

The message for those of us living with diabetes is the same when it comes to getting the flu as it does for getting COVID-19. We are probably not more likely to actually get either of them, but if we do, diabetes could complicate our recovery. Plus, managing diabetes with any sort of infection usually comes with a massive degree of difficulty.

The message is clear: get your flu shot. Encourage friends and family to get theirs. It really is the responsible thing to do.

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