Earlier in the week, I woke to a heap of messages highlighting an incident in the UK where a female MP had been told to watch her tone by a male MP. I muttered something about strident women and moved on. ‘Not my monkeys, not my circus’ has become a useful mantra in the time of COVID-19!
Then, later on the same day, I was pointed in the direction of a wonderful (???) social experiment where a bloke on Twitter had changed his avatar to that of a woman (or rather, as he said, a ‘lady avatar’) and could confidently report back to the world that he was treated very differently, and dealt with jerks, annoyances and microaggressions. And that he received dick picks, which he found violating.
I sighed. ‘Another fucking monkey’, I thought. But this is a circus of which I am very much a part!
Despite daily, actually, hourly if not more frequent, comments on Twitter where women emphasise just how shoddily we get treated by men, it takes a man to pretend for a short period to be a woman to prove (to him, and apparently others) that what we are saying is true.
My response to his experiment was this:
Of course, this little ‘investigation’ (and I use that term loosely) made me immediately think of all the times HCPs have participated in ridiculous simulations of what it is like to be a ‘patient’ so that they can truly understand how difficult it can be, instead of just simply listening to what we say about it. You don’t need to sit in a hypo simulator to appreciate that hypos suck. Or to wear an insulin pump for a few days to know they can be a pain in the arse to wear.
No, you just need to listen to people with diabetes. We can tell you how much hypos suck in a million different ways, using words, images, or interpretive dance. There are poems about it. There are TED talks. There are pages and pages and pages written about it. You can check out all those things. Or just us ask! And then listen.
And also, what gets missed from these short-term experiments is that they are so damn superficial. They barely scratch the surface of what they are pretending to be. The bloke on Twitter had a couple of days of tweets coming his way that he found annoying. But he didn’t feel the threat or fear that women feel when we are being intimidated online. And at the end of his little game, he could go back to being himself. The same goes for anyone pretending to ‘do diabetes’ for a minute of two.
To our social researcher (another term I am using loosely) on Twitter: next time, just listen and believe the women who are living, and talking about this crap every single day. I’d urge HCPs to do the same thing when it comes to listening and believing the people they are working to help.
Oh, and to the tosser who tone policed his colleague: just don’t do that. Ever.
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May 8, 2020 at 6:16 pm
G.M. Bunyan
G’day Renza Love it and feel it too – Gerry and I were just discussing something similar about a certain company (not the one she works for I hasten to add, although it still has its problems) and the added problem of not being a Euro-Anglo Australian and, God, a woman. Men also need to listen not only to what women say, but also to what the men around them are saying, or not saying. Anyway i’m preaching to the knowledge. But I also wanted to see how you are getting on in our “Life in the Time Of Covid” – apart from your baking frenzy! Did you manage to check in with Grumitt? He’s happy to talk because he has enormous respect for everything you do.
Looking forward to catching up when things free up. Chrz Gordon
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May 8, 2020 at 10:56 pm
Bjarne
dear Renza regarding the subject of HCP´s listening to PWD and their families I am totally aligned with your position. Just listen.
Regarding the socalled “social experiment”, yes maybe they are superficial,but youre missing the point. The point is that investigation reveal a truth that otherwise would not come out like this, and that an investigation like this creates a healthy and needed debate and attention. More investigations please. It would be perfect if one or more undercover journalists in “Gunther Wallraff” style would reveal the diabetes industrys (and HCP´s) real attitude towards their customers. If you scratch a little bit in surface behind the glittering and fancy words and chromed intentions of userinvolvement, you will probably find that the roots of the plant are infected with rot
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May 9, 2020 at 3:21 pm
Merinda
Hear-Hear Renza, Hear-Hear!
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May 10, 2020 at 12:35 am
Carolyn Thomas
Gee, what a concept, Renza: “….all the times HCPs have participated in ridiculous simulations of what it is like to be a ‘patient’ so that they can truly understand how difficult it can be, instead of JUST SIMPLY LISTENING to what we say about it….”
This tendency likely explains why when doctors become patients, they are so shocked by how awful it is, they feel compelled to write a book… (as I explained not-too-delicately to them in this BMJ essay: https://blogs.bmj.com/bmj/2014/01/14/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients/
Not grasping the bloody obvious when it’s being described by the person right in front of you reminds me of early palliative care studies (Chochinov et al) that concluded (wait for it!) that patients feel better when they are listened to.
Who knew?
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