Ask a group of people with diabetes about their experiences of stigma, and for examples of the sorts of things they’ve heard and before long you’ll be able to compile a top ten list of the most commonly heard misconceptions that have contributed to diabetes having an image problem. When I’ve asked about this recently, the main perpetrators of these seemed to be healthcare professionals. More on that later this week.
This year, in the Diabetes Australia National Diabetes Week campaign about diabetes-related stigma, two videos have been produced and they’re almost like a highlight reel of some of the stigmatising things people with diabetes hear.
Let me tell you something I found really interesting. As part of the testing of these, I showed them to a heap of people with diabetes and a heap of people without diabetes. The reaction from people with diabetes varied from sadness (including tears), to anger and frustration, and mostly, recognition in everything they saw.
The reaction from a number of people without diabetes was disbelief that this really happens. They simply couldn’t believe that people would be so insensitive; so cruel, so shaming.
However, for so many people with diabetes, this is our reality.
Here’s one of the two videos we produced. (You can watch the second one here.) Already, this is being shared widely in our own diabetes community. I’ve lost count of the places online I’ve seen this shared. Keep doing so, if you can. Because clearly, we need to get the message out to those without diabetes so they understand that not only is this sort of stigmatising behaviour harmful, but it is also horribly common. And it needs to stop.
DISCLOSURE
I work for Diabetes Australia, and I have been involved in the development of the Heads Up on Diabetes campaign. I’ve not been asked to share this – doing so of my volition, because I think the messaging is spot on. The words here are my own, and have not been reviewed prior to publication.
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July 13, 2021 at 6:39 pm
Min
Yes I held my breathe watching this, I’ve heard all of those comments made to my face and many more worse than that .I remember going on a school camp to Melbourne in year 10 and going into public toilets every time to do my insulin so no one had to look at it. Its so sad when I think back to my teenage self and think how I was trying to protect others from my health reality just in case they reacted poorly. Now I just do it, where ever I am, in front of anyone, they dare ask and I am armed, but its taken me 50 years to get to that place where I feel empowered to say back off. Unfortunately sometimes it the closest people to me that say the wrong things and wow that hurts. Like today, I always have a fractionally high sugar after breakfast, so I went to Aldi today thinking I had enough energy onboard, but no I didn’t for some odd reason today and then had to attempt the Aldi check out with double vision, shaking, tryng to stuff in jelly beans like a mad woman, I just did it, I didn’t care that I looked in sane eating handfuls of them at once while trying to keep up with the Aldi check out!!! Ya have to laugh, its madness when you have the right sugar level, let alone when your having a hypo. hahahaha.
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July 13, 2021 at 7:42 pm
John Grumitt
An excellent video, Renza which I’ve shared. I’m constantly explaining the basics of the condition in response to questions people ask me, if only to promote and encourage greater understanding. Despite the judgemental nature of a few, over many years, I think awareness has improved a great deal, but it’s far from over.
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July 14, 2021 at 12:44 pm
Rick Phillips
The question, is it more important to be noticed and made fun of, or ignored. It might be a tough call in some parts of the world.
rick
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