Hi Lady
I was a little snappy to you the other day. But then you were rude, so how about we call it even? I wrote this just after our little encounter and I hope you take it in the spirit in which it was written. That spirit being ‘pissed off’.
I didn’t say anything when you first started making comments directed at me. We were sitting in a busy café. A small, busy café with lots of people and some kids, and a woman trying to juggle a screaming baby and drink her coffee, and quite frankly, I was paying more attention to her to see if she needed any help trying to locate whatever it was she was desperately searching for amongst her gear.
So when you made your ‘Ugh – does she have to do that?’ comment while staring at me – and then pointing, I ignored you. I didn’t say ‘Yeah, I do. I’m checking my BGL to calibrate my CGM. The buzzing on my phone (because I should have already done it) is pissing me off and probably everyone around me. So, yes, I do have to do that.’
And then when you announced to your friend – and everyone else I the café (did I mention it was a small café) that I ‘must have diabetes,’ I ignored that too, even though I didn’t really see how my medical condition was any of your business, or of any interest to the rest of the people trying to have a morning coffee and prepare for the day.
I did throw a death stare at you when you moaned about the crying baby. I know that the kid had a set of lungs on him, and I know that he was loud, but I promise you that he wasn’t doing it on purpose. And no matter how uncomfortable it was making you feel, that’s nothing to how it was making his mum feel. I didn’t say that because that was the moment that I did lean over and offer to pass the mum the dummy she was reaching for in her baby’s pram, and then we had a bit of a chat after her little one settled down.
I looked away, but was listening intently, as you complained about how you’d seen people with diabetes inject in public and that you hate the thought of me leaving blood around the café after I’d finished calibrating my CGM. In no uncertain terms you announced with misplaced authority that ‘diabetics’ (your word; not mine) should use the bathrooms provided to do whatever it is we need to do.
I tried not to listen when you shared the story of someone you knew who had all sorts of nasty diabetes complications, because you were starting to sound like a cliché and I really don’t like to hear about end-stage renal failure before I’ve had at least two cups of coffee. I wasn’t there yet. Not nearly there yet.
But then, when you started your ill-informed rant about diabetes, I couldn’t stay quiet any longer. When you started saying that I probably shouldn’t have just added sugar to my morning coffee because I am ‘diabetic’ and that if only I ate better and did some exercise I’d be cured, I decided that it was time for us to have a little chat.
Could I have been more polite? Yeah, absolutely. But then, so could you. So I’m not actually going to apologise for my manner.
You probably didn’t listen to what I said, so I’ll lay it out for you again:
Yes, I have diabetes. No amount of exercise or different eating is going to change that fact. But that’s not really the point. The point is that it’s not your concern that I have diabetes, and certainly none of your business to suggest how I could better manage my condition – especially when not asked. Diabetes cannot be cured, so you should probably strike that piece of advice off your playlist for good.
It’s not appropriate to chastise someone for doing a task that needs to be done to manage that condition. I’m pretty sure I’m right when I say that no one voluntarily jabs their finger to check their BGL because it’s fun and they’ve nothing better to do. I can also promise you that your claim that I’ve left ‘blood all over the café’ is completely groundless. I generally don’t splatter blood from my tiny finger prick test on every surface nearby.
But this is the message that I really hope got through: It’s not your place to comment, criticise, or appraise someone’s health condition. Nor is it okay to judge someone. We get enough of that – often from ourselves. Really, you should have said nothing. Nothing at all.
After I finished what I was saying, I stood up and went to the counter to pay because I wasn’t interested in hearing your reply. You’d already said more than enough. But I did leave you my card with the address this blog. I’m hoping that you typed in the URL and started to read. (Actually, I hope you’re doing it after I post this, so you can read this letter because you did, after all, inspire the content here today. Thanks for the content.)
And I hope that you click on a couple of other posts and have a read about what it’s like for me to live with diabetes to give you an idea of just how wrong you seem to have the whole diabetes thing.
If you see me again in the café, feel free to come up and say hi and we can have a chat. As long as you have remembered your manners and can be respectful, I promise to be polite in return. I’ll even buy you a coffee and answer any questions you might have.
Best
13 comments
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March 30, 2017 at 12:16 pm
kelly2k
You rock the body rock and way to go, girl!
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March 30, 2017 at 1:05 pm
Jeann
Well done, Renza! You were a saint for holding your tongue so long. I used to slink off to public bathrooms to inject and then thought ‘yuk’. So I would inject wherever I was. Of course, it is easier with a pump but I still need to use a lancet to provide a microscopic amount of blood to take my bgl. It is bad enough having to do these things without people….ignorant people…making comments and giving advice..
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March 30, 2017 at 1:27 pm
Annabelle Leve
Yes you go girrrl! My blood boiled as I read that… What a nerve. It took me many years before I had the confidence to test blood or inject in public, no more hiding in the toilets for me. x
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March 30, 2017 at 2:00 pm
ragingyoghurt
omg! plus i wonder what she said when the other lady started breastfeeding at the table.
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March 30, 2017 at 3:54 pm
Pam
Hey Renza.
Another great blog!!
Is it ok if I re post it, as is, on my facebook page?
I reckon it is a valuable message for many ‘observers’ and hopefully will break down some barriers or ease the stigma attached to testing and injecting in public.
Pam (a fan)
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March 30, 2017 at 10:11 pm
Victoria Burns
Wow! I can totally relate. I often have to check my BS at the gym – and on the bike while spinning. One day I was feeling low BS so I pulled out my meter and my trainer (albeit nicely) abruptly said “why don’t you do that in the back room, not here!” I followed his suggestion but it didn’t sit well with me – as you said, it’s not as though we do this for fun, it’s literally a life and death thing! I hope this woman at the cafe does take the time to read your blog and gain a new perspective of what it is like to live with diabetes. xo
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March 30, 2017 at 10:41 pm
Andrew Dyke
🙂 Absolutely!
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March 31, 2017 at 8:59 am
Sam Dureau
You are just so classy, lady. I probably would have told her to eff off.
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March 31, 2017 at 11:45 am
Rick Phillips
I hate these discussions. Once a lady at a trendy Boston hotel grabbed my sleeve and told me my pump tubing was exposed. She wanted me to put it in its oooh proper place. Nope, I cannot do that I said, this is a fashion statement. People cannot seem to help giving advice. Fashion and otherwise. Open those sugar packet sister.
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March 31, 2017 at 9:19 pm
Actually Mummy
Probably the worst aspect of living with this condition is the perceptions of other people
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April 1, 2017 at 12:57 am
Sarah Christie
oh makes me so cross, I get dirty looks when I take my sons needle bins to the doctors, people just assume I am a drug user! Go you for telling her.
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April 23, 2017 at 5:36 pm
Liz Fleming
I am shocked but then again maybe i shouldn’t be. There are so many ignorant people in this world. My daughter is a type 1 diabetic and tests and injects herself in public places all of the time. In no way should she be made to hide in a toilet to do this. If anyone dared object while i was around god help them.
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April 23, 2017 at 10:45 pm
Nicky
Yes I have diabetes and I’m not going to hide behind a door in a room where people empty their bowls and bladder.
If you have something nasty to say, keep it to yourself.
I don’t have a choice, I need to do certain things so that I can be the healthiest me I can be.
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