At the beginning of National Diabetes Week, I often think we should create some sort of drinking game for every time the tabloid news churns out diabetes myths and misconceptions. I realise the flaw in this idea – we’d all be drunk by 9am on launch day and stay that way for the remainder of the week.
Diabetes myth busting is exhausting. Honestly, sometimes I feel like we need a cape and some sort of auto-reply weapon because we are fired the same comments from every angle and it gets boring: No – diabetes isn’t contagious. Yes – I still have diabetes. No – it’s not only kids that are diagnosed with type 1 diabetes. No – there is not one type of diabetes that worse/better than another type. Yes – I can eat that. No – I can’t cure my diabetes with a diet of kale, kombucha and positive affirmations to the fairy god of keto diets.
As we fire back our response with accompanying eye rolls, muttering things under our breath and wondering when the stupidity is going to stop. (Spoiler – it’s not.) It is tiring and it seems never ending. Sometimes, we just can’t muster up the energy to respond, so we don’t. And that’s absolutely okay.
My level of frustration about diabetes misconceptions varies depending on where it is coming from. I kind of expect it from commercial television; I expect better from the ABC and SBS (as I wrote here about kale-kombucha-gate).
Where I find my frustration levels hit fever pitch is when those misconceptions and myths are perpetuated amongst the diabetes community.
This week, there was an article circulating about what type 1 diabetes is really about. I’m not sure if it was a new piece or if it resurfaced because it was NDW. I am all for using this week to set the record straight and ensure that what is written is factual.
What I am not for is when people try to explain type 1 diabetes by stigmatising type 2 diabetes. That makes me really, really mad. Explaining what type 1 diabetes is and how it works can be done without making type 2 diabetes sound like it is the fault of the people living with it. But time and time again, I see people with type 1 (and parents of kids with type 1) use phrases like ‘My/My child’s diabetes is the one they didn’t bring on themselves’ or ‘My/My child’s diabetes can’t be reversed – I/they have it for life’.
Type 1 diabetes is serious, and it is seriously misunderstood. But so is type 2 diabetes. As people living with type 1 diabetes, we know how frustrating it is when people get it wrong; we know how awful we can feel when people say things that make us feel bad. And we know how maddening it can be when people say things that make us feel blamed and shamed for having type 1.
So why is it the default position of many living with (or affected by) type 1 to throw people with type 2 under the bus as if they don’t have the same response we do when people get it wrong. Those feelings of stigma and shame we feel? People with type 2 have them as well.
I have type 1 diabetes, and for a long time, all the work I did centred around type 1 diabetes. I make no apologies for that. In fact, I built my career by growing from the ground up an unapologetically and exclusively type 1 diabetes program. There was a huge gap that needed filling, and the diabetes organisation I was working for at the time was prepared to throw resources at making that happen.
I wrote the other day that I know I will be focusing a lot on the National Diabetes Week 4Ts campaign which focuses on the symptoms of type 1 diabetes. This isn’t only because I have type 1 diabetes. It’s because so many of my friends diagnosed with type 1 – especially those diagnosed as adults – have horror stories to tell and I truly believe that a smooth, boring type 1 diabetes is far, far better than a traumatic one.
It is absolutely okay to have a focus for your own advocacy – no one should be made to feel that they have to fight for everyone or every single issue. I know a lot of people who fundraise exclusively for type 1 diabetes research because improved treatments and finding a cure is the most important thing to them. All the power to them, I say.
But there is no need to build up one cause by pushing down another. It’s not okay to fight the stigma of type 1 diabetes by contributing to the stigma felt by people with type 2 diabetes. And it’s not okay to correct people for not getting the facts about type 1 diabetes right by getting the facts about type 2 diabetes wrong.
For me, it all comes back to this: all diabetes sucks and no one asks to get diabetes. We’re all doing the best we can with whichever diabetes has been served up to us. Saying something so others feel bad makes no sense at all.
4 comments
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July 19, 2019 at 6:34 pm
Min
hmmmm I’m in two minds on this topic.You perfectly sit on the politically correct fence on this one. I hear it once a week on the tv, in the media and to my face the comment about “you will get diabetes if you eat all that sugar” Yawn Yawn Yawn! No you wont get diabetes from eating a mars bar in your coffee break. And the type 1 type 2 type 3 type 4 thing annoys me. Lets not call them a type lets give then separate names to stop the confusion and the stigma as type 1 and type 2 are a very different ball games both with the same confronting complications and both with there own set of challenges. I am so tired of doctors or people in general assuming I have type 2 just because I am now 53 and I’m genetically roundish, That’s the type 2 stigma picture which as we all know is not always the case, I know a very skinny young type 2 diabetic and I also know a very round type 2 diabetic whom I diagnosed and sent him to his gp and who no longer has elevated blood sugars as he lost 6 stone, I would love to lose weight to right my blood sugars but!!!! .I was once a skinny tiny 5 year old diagnosed with type 1 who grew into a roundish 53 year old and yes I still have type 1 diabetes and no is hasn’t turned into type 2 along with my the kgs I have found over the years. Just give them 2 separate names, its too easy and then that cuts out the forever having to explain.
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July 19, 2019 at 10:28 pm
Krishna
i am atype1 diabetes patient and i am also enjoying this diabetes week healthy way like eating fruits and having fun games. see you lot more article s like this
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July 20, 2019 at 1:02 pm
Rick Phillips
How many types of diabetes are there? 3, 5, 9, 10, 13 more or less? Type refers to how we got it, not what we do about it. Does the fact that because of medical issues I had my pancreas removed make me different than a type 1? Does the fact that i had too much radiation exposure make me different than a type 2?
The types are just different paths to the same problem. I am glad I have insulin to deal with my diabetes. I think those with type 2 or gestational diabetes have it so tough.
What is the worst diabetes? It is the you get. What is the best diabetes? I dont know any.
In the US without children having type 1 we would never get funding. Without adults with type 2 we would never get funding. Which type should be called your fault? None I know.
We need each other, we need to keep our types different, that tells us how we got there, but we need to keep our disease the same. When I find a good diabetes, I will favor kicking them out of the family. I do not expect I will ever find that.
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July 21, 2019 at 12:01 am
Cathrine Millar
Thank you! Thank you! Thank you!
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