I bought a new t-shirt the other day. I saw it on Instagram and decided that I just had to have it. I’m not sure if it was growing up in a mostly female household; or the six years I spent in an all-girls school; or perhaps it’s the friends I am fortunate enough to be around a lot; or maybe the fact that most of the people I work with are dynamic women; or raising a daughter in 2018. Whatever it is, girls supporting girls, and women supporting women is the approach I have always tried to take in both my personal and work lives.
I guess my thinking is that we need to look out for and support each other because we know that outcomes for girls and women around the world are not always that great. And also, when women build each other up, and support and encourage each other, we are unstoppable!
I was thinking about this last night as I followed a Twitter conversation that all started after a somewhat sensationalist article in a newspaper about a bloke (sportsperson?) who, as it turns out, seems to have some diabetes-related neuropathy. As people shared the article and spoke about it, there were a couple of comments from people with diabetes about this person – another person with diabetes – ‘not looking after himself properly’.
When I started reading, I almost pinched myself to make sure that I hadn’t been sucked into some sort of void, and been dragged back to another time. Because this conversation has happened before – countless times. (A search through Twitter and this post pointed me to just a couple of those times.)
Diabetes-related complications and stigma. Diabetes-related complications and language. They go hand in hand. And along for the ride is judgement.
The complexity between diabetes, and developing diabetes-related complications is far too much for my little brain to comprehend. But I do know that there are no guarantees in diabetes. And I know that blaming people for whatever path their diabetes travels is not helpful in any way.
When someone suggests that another person with diabetes is ‘not looking after themselves properly’ there is a lot packed into that. It may not be intended, but that comment is so loaded with blame and shame and judgement that it becomes agonisingly heavy and, quite frankly, terrible.
To suggest that someone’s diabetes-related complications are the result of them ‘not looking after themselves properly’ means that essentially what is being said is that the person intended for this to happen. That they ‘brought it on themselves’. That they deserve to now have to face a future of diabetes-related complications.
To that, I say bullshit!
And, somehow, it is even worse when a comment like that comes from another person with diabetes, because if anyone should understand how harmful judgement can be, surely it is others with diabetes.
Supporting each other doesn’t mean just patting each other on the back and saying ‘good job.’ It is far more than that. It is acknowledging that we are doing the best we can at that moment time with what we have. It’s accepting that there are myriad ways of managing diabetes, and that people should have the right and the ability to choose the way that is right for them – even if we don’t think it is right for us. It is encouraging others’ efforts, cheering their successes and standing alongside them when things are tough. It is being happy for other PWD when they are doing, or being invited to do, great things.
It is not saying ‘You are not doing enough’.
We would be quick to say that it’s not okay for a healthcare professional to suggest that we are not trying hard enough. We don’t accept it when the media make claims that people aren’t looking after ourselves properly. We push back and say it is not okay when those without diabetes suggest that we are not doing our very best.
And in exactly the same way, it is not okay for other PWD to criticise one of our own because, honestly, we should know better. We should be on the same side. We should be building each other up.
It is completely unreasonable to expect that people with diabetes are going to agree on everything, and actually, who would want that anyway? Diversity of opinions is as important as diversity of experience. We all have our own ideas and ways to live with diabetes and there will be times that we completely disagree. That is all fine, as long as it is done with respect.
But even with those differences – differences that we can celebrate – the commonality of messed up beta cells should be what brings us together to be on the same side.
I could be Pollyanna-ish about it all and say that we should just be kind to each other, and that may be a good place to start.
Living with diabetes is fucking hard. We never, ever get a break from it. No matter how manageable our diabetes seems or how cruisy things may be at a particular moment, it is still always there. It doesn’t matter if we are scaling mountains or running marathons. Or living our dreams or travelling the world. Or getting up in the morning and going to work or school. Diabetes does not take a break.
Diabetes doesn’t take a break. But we can give each other one. No blame. No shame. Just an acknowledgement that we are doing the best we can. PWD support PWD. That’s what makes us stronger. That what makes US unstoppable!
P.S. If you really don’t agree with what someone is doing with their diabetes, you can say nothing at all. You don’t have to be critical.
3 comments
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August 30, 2018 at 11:18 pm
Liz Ayers
Yes! Agree with this post 100%
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August 31, 2018 at 11:38 am
Rick Phillips
so OK, I have neuropathy, and my pickle no longer works as I hope. I admit my past mistakes, and I hope most acknowledge that for the last 20 years I have been doing a great job.
Now which part shall we discuss? The prior 25 years that I was a wreck or the past 20 when I have been killing it? Do I ever get past the prior 25? How about if i do not give a rats A$$ what people do or do not say about my management?
Here is the thing, I am many things. I am a person who cares a lot about diabetes and who does not care one wit. I also fess up to my issues. I bet i am more like most of us than not and guess what else? This is why we need it discuss complications every once in awhile. Bad things do happen, I do not want sympathy and I refuse to accept anyone’s condemnation.
I am me. It is high time our community let’s people be who they are and accept them with love, all of them, even people like me who are not perfect. Because here is the deal, I bet those lobbing criticism are not perfect either.
(I love the blog by the way)
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August 31, 2018 at 12:03 pm
Jean Beaumont
Beautifully said. Yes those harsh comments happen to me constantly from ignorant non understanding normal people, even some of my friends who have no clue what an hour living with diabetes is about let alone an entire lifetime, but I also don’t expect everyone to get it either. I have certainly never had it said to me from someone with type 1 diabetes, not that I know many. I believe a ‘get f—–‘ is warranted in a moment like that as you have suggested before. I am super defensive about my health these days, more so than ever as complications are starting to take hold and people love to throw self blame at it or suggest what I could be doing better.. I often think about my journey with its cruelty and cannot believe I still walk this earth. I feel proud of just how hard I have worked on my health for a lifetime to have got this far doing as well as I am. There is a over spilling truck load of looking after myself to avoid death in one day let alone in 47 years. So, I take my hat off to my so called “lack of taking care of myself” as in fact it is the opposite that has taken place to ward off the complications for as long as I have, no matter what, those complications do turn up unfortunately. Ignorance is bliss but it can be as equally hurtful when ignorance throws off comments with insensitive naivety to people who are vulnerable.
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