It’s day four of the eighth annual #DBlogWeek, created by Karen from Bittersweet Diabetes. This is the sixth year I’ve taken part and it’s a great opportunity to not only write about some truly interesting topics, but also a chance to read some blogs you may not otherwise. Here are the links to today’s posts.
Today’s prompt: May is Mental Health Month (in the US) so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope?
One of the things I’ve found about living with diabetes is that the way I respond to certain situations is inconsistent. Some days, I’ll look at a rollercoaster CGM trace, shrug my shoulders and think ‘That’s diabetes!’ and move on. Other times, I’ll look at a similar rollercoaster CGM trace and burst into tears, wanting to curl up in the corner under a quilt, asking ‘Why? Why? WHY?’ while someone brings me a cup of tea and Lindt orange chocolate.
There are periods when my resilience stores are high and I can manage anything thrown at me, and other days where the smallest diabetes issue sends me into a spiral of despair. The unpredictability of diabetes is matched only by my own haphazard responses.
There do seem to be some things that do get me down pretty much any time they happen. When diabetes starts to affect my family, making my health issue theirs, I get very emotional and upset. I think it is probably a combination of sadness, guilt, anger and frustration that guarantees an emotional response.
The unknown of diabetes worries and scares me. I don’t think about it most of the time – I guess that is how I cope. The fears and anxiety are neatly packaged up and hidden away, brought out only in moments of weakness – or perhaps when my resilience is low.
Earlier this month, when I was an invited speaker at the Primary Care Diabetes Society of Australia (#PCDSAus) conference, and in the same session as me was Dr Christel Hendrieckx from the Australian Centre for Behavioural Research in Diabetes. Christel was very clear that clinicians need to consider diabetes and emotional health side by side as the two are undeniably connected.
I truly think that when we break it down, we can’t separate the two. When we live with a condition that is so ever-present; that we invest so much of our time and energy into managing; that we can’t put in a box when we are feeling over it and come back to it when we feel more equipped, it’s impossible for it to not impact emotionally.
We, all too often, draw a line with the physical on one side and the emotional on the other side. That line is terribly blurred – if it’s even there at all – when it comes to diabetes.
16 comments
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May 18, 2017 at 7:29 pm
Pam
There is so much to be said for doctors not forgetting about the patient and their emotions.. I touched on this a little yesterday with the blame game.. Diabetes is chronic, and the patient becomes and expert so it is a two way discussion. Otherwise, a patient may feel worse about diabetes. Helping them find the positive, even if the results they were hoping for did not happen can have a big impact.
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May 19, 2017 at 2:18 pm
RenzaS
This is a really thoughtful comment, Pam. Thank you!
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May 18, 2017 at 8:34 pm
Type1Bri
Love this blog, a line in the sand is how I look at diabetes and depression. A line which is all too easily scrubbed out when things go awry
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May 19, 2017 at 2:18 pm
RenzaS
Thanks, Bri!
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May 19, 2017 at 12:12 am
Bruce
Hey, get out of my head! You’re not supposed to be able to read my thoughts! But really, perfect and timely article for me! Thanks!
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May 19, 2017 at 2:19 pm
RenzaS
Thank you, Bruce! (Sorry for being creepy and inside your head!)
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May 19, 2017 at 12:22 am
Kelley
Well said and I think the doctors play a part in drawing that line…they only ever focus on the physical and not the emotional
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May 19, 2017 at 2:20 pm
RenzaS
I think a lot of times HCPs feel ill-equipped for dealing with the emotional side of diabetes. The ACBRD in Australia has recently published a mental health handbook for HCPs about diabetes and the emotional impact – very practical tips for how HCPs can address not only the clinical. Thanks for your comment, Kelley!
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May 19, 2017 at 1:18 am
rachelzinmanyoga
I think this truly the most important thing. When we go to our HCP and they give us bad news or whatever we need to feel safe to express our emotions. Thanks for such an awesome post!
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May 19, 2017 at 2:21 pm
RenzaS
Yes!! We need to feel there is space to safely talk about how diabetes makes us feel. Absolutely! Thanks for reading, Rachel.
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May 19, 2017 at 2:01 am
TheFeatheredSleep
Excellent
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May 19, 2017 at 2:21 pm
RenzaS
Thank you!
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May 20, 2017 at 2:10 am
TheFeatheredSleep
well deserved xo
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May 20, 2017 at 12:19 pm
RenzaS
Thank you!
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May 19, 2017 at 1:05 pm
Rick Phillips
We are the sum of two parts. In my family, we tried to leave it there. Years of therapy have helped me overcome that. It is a work in progress, always will be.
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May 19, 2017 at 2:25 pm
RenzaS
I think that is exactly how I feel too….a work in progress…. Thanks, Rick!
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