I am not the sharpest tool in the shed sometimes. In fact, there are many times that I wonder how I have managed to get to this stage of my life without doing some permanent damage, or embarrassing myself so monumentally that I could never leave the house again without wearing a disguise.
But even though I am sometimes a sandwich short of a picnic, I am still able to decipher between high and low blood glucose levels and understand what constitutes in range, below range, above range, stratospherically-above-range-so-do-something-now and about-to-plummet-to-new-depths-if-you-don’t-mainline-glucose (the last two are highly technical terms).
Yesterday morning, I woke up with a start and within 2.1 milliseconds, realised I was low. Really low. I reached over to my bedside table and scanned the Libre reader across my arm to this:
There is some really useful information on that screen. The large font-size numbers confirmed my ‘I.Am.Low’ predicament. The graph is also useful (perhaps not while my glucose is sitting at 2.3mmol/l, but later on I was able to look at it and try to work out the reason for the rapid drop from 1am). The red line below my target range is also useful because it shows how long I had been floating around there before I woke.
The piece of not so useful information is the alert in the top left hand corner. A warning sign with the words ‘Low Glucose’
This is not only on the Libre. If I try to bolus on my Animas pump when my BGL is above range, the delivery steps are interrupted so that I can be told that I am high. I know, Sir Pump-a-lot. That’s why I am pressing buttons. I need you to do your thing and give me some insulin. It makes absolutely no sense to halt the process right now to remind me I am high.
I know I sound like I am whinging for the sake of it. I could just ignore the messages and focus on the fact that this great tech is helping me manage my diabetes is a really useful way.
But the problem with these little messages is that they are a constant reminder of how frequently I am out of range. It’s not enough just to see the out of target number, but my devices then do a little ‘ner ner ni ner ner’ song and dance about it too.
It makes me feel that a lot of time I am messing up and failing – because a lot of the time my numbers are not where they need to be. The last thing I need is to feel that my bloody diabetes tech is judging me. There is already enough of that in diabetes.
8 comments
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May 26, 2016 at 2:34 pm
Bec
Hi renza. Have they said when the libre is going to be available in Australia yet? Or what the cost will be? I want one so bad!
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May 26, 2016 at 2:35 pm
RenzaS
All the details that are available are on the Libre (Australia) website. Make sure you register your interest so that would will be informed as soon as it is available. The costs are on there too.
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May 26, 2016 at 2:41 pm
David
Hi Renza, if you were in an emergency and someone else figured out how to scan the Libre or read the pump – the words “Low Glucose” or “HIGH BG. Treat High BG” might be useful information to them.
I would prefer it be simplified further as it needs to be understood by someone who is not familiar with diabetes.
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May 26, 2016 at 2:45 pm
RenzaS
That’s a really useful thought, David. I guess that it is me who is always using my devices, so for me I find it of no benefit. In fact, I find it a negative. But in an emergency situation, I can see how it may be really useful. Thanks for your comment and for reading.
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May 26, 2016 at 3:29 pm
pam oka
yes, yes and yes Renza! You have articulated my thoughts and feelings exactly. I always feel like Ive ‘failed’ when not in range. And weirdly feel better about having a too low result than being too high? Why is that I wonder? So so good to read your straight talking accounts about all things ‘diabetes’ Im type 1 like you for almost 20 years and still screw up. Fortunately no disasters but a constant source of frustration. Keep on reporting…love your work!
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May 26, 2016 at 4:38 pm
phillybuzzter
That info isn’t ready for you though. It’s for the 50% that would plough on ahead without fully understanding what they were doing. And of course for the manufacturers to say “we’re not liable for the hypo coma. The user ignored our warnings and went ahead anyway…”
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May 26, 2016 at 10:14 pm
Scott E
Preach on! My pump (Medtronic) does the same thing — I just “OK” right by it when I feel the alert-vibration. I don’t even remember what it says…shows you how effective that is.
But my meter (Bayer Nextlink) really bugs me. If I’m out-of-range, it beeps twice and then shows the result in “caution-orange” (otherwise it’s silent and the readout is in white. I can’t begin to tell you how many times I’ve spoken these words during the 5-second countdown: “pleasedontbeep… pleasedontbeep… pleasedontbeep… crap!”
It’s really not helpful.
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May 26, 2016 at 10:59 pm
Daisy
I also have an Animas pump and I totally agree about that super annoying high alert!!!! I don’t think it should be there at all – every time I see it I say (generally out loud) “I f-ing know I’m high, that’s why I’m bolusing!”
It is really unhelpful, and deters me from using the ezBG feature (or setting the warning to a level that is not likely to come into effect too often).
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