Today I hate diabetes.
I am completely and utterly sick of the World Diabetes Day messages that are scrolling through my screen. I am over looking at posters and diabetes empowerment messages and I cannot be bothered being involved in the activities that are all around me. I don’t want to talk about it – which is actually really unfortunate as I am giving a Grand Rounds talk at the Austin Hospital today about life with type 1 diabetes.
This morning I am hypo-fucked after dealing with a low that would not quit. This is the sort of low that mocks and teases and is just plain cruel. And when it finally passes, glimpses and flashbacks plague my mind for the coming days, reminding me how vulnerable and scared I feel.
I needed help to manage it – and I absolutely hate making my lows someone else’s problem. Eventually, after a jar of jelly snakes, raisin toast and two glasses of milk, my BGL started to resemble something respectful and I was able to change out of my sweat-soaked PJs. Despite being in something dry and under a warm doona, I was chilled to the bone and shivered for an hour before finally falling asleep.
Today, diabetes made me break a promise I’d made to my daughter – a walk to school with the puppy. But what made me feel even worse was the way she nodded her head in acceptance – and understanding – of why I was breaking the promise. I hate that diabetes is part of my daughter’s life because of me. I hate that she understands diabetes. I hate that she ‘gets it’ when I tell her that I can’t do something because of my stupid blood sugar.
Today I hate diabetes.
Today, I feel defeated. Today, I desperately want to not be living with this condition.
Yesterday, I took part in Diabetes Queensland’s WDD social media campaign that asks people to share what ‘type 1 diabetes for me is….’ (#T1D4MeIs). Here is what I came up with:
Today, my poster would look a lot different. It would have just one word.
Today I hate diabetes. I don’t feel empowered. I don’t feel ‘in control’. I just feel sad. And scared.
14 comments
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November 12, 2014 at 3:40 pm
Jeann
Renza I just want to give you a great big hug! I can understand your panic and the fact that it impacts not only on your life but those around you, particularly your daughter. The lowest I have recorded is 1.5 but I think I have been lower than that as I couldn’t chew jellybeans and asked my husband to get me some ‘thick’ cordial. I was incapable of taking a level and as he has arthritis he can’t manage anything requiring fine motor muscles. Thank goodness he interpreted my request correctly. I felt as if it took forever for my bgl to rise…and then it headed into he stratosphere.
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November 12, 2014 at 4:55 pm
RenzaS
Thanks for sharing, Jeann. I’m feeling better now – and managed to tie in this story with the talk I gave….There’s the silver lining!
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November 12, 2014 at 4:48 pm
Cindy Reed
I have just started reading your blog and l want to say thank you. It is so refreshing to read what I am feeling. You are amazing. I have had type1 for 37 years l am 50. Your stories really resonate with me. Keep it up and yes hypo s are Crap. Cindy
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November 12, 2014 at 4:56 pm
RenzaS
Thank you so much for your lovely comment, Cindy, and for reading. I think that with 37 years of type 1 under your belt, you are pretty amazing!
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November 12, 2014 at 8:09 pm
Rosie Walker
Talk about diabetes picking its moments – not! so heartfelt, Renza & hope the day goes well for you. If a hug from across the world helps at all, sending you a great big one! 🙂
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November 12, 2014 at 9:25 pm
RenzaS
Thanks so much Rosie. Cyber hugs are hugely appreciated!
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November 12, 2014 at 10:31 pm
flipco1@hotmail.com
Agree scary hypos are just plain SCARY! Never good. So know how you are feeling – hope this becomes a distant memory soon.
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November 12, 2014 at 11:11 pm
RenzaS
Thank you!
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November 12, 2014 at 11:09 pm
Kirsten
Sorry to hear about the very crappy hypo Renza. For what it’s worth, though, posts like these remind me I am not alone having days where I completely hate diabetes too. On those days I think I am the only one struggling through, and that no-one in the whole world understands, which makes you feel even crappier. So today I am grateful you have shared your experience, as scary and foul as it was for you (and hope you are feeling better).
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November 12, 2014 at 11:13 pm
RenzaS
Thanks for your kind words, Kirsten. The reason I blog is to share my story and hear others’ experiences and to connect. Feeling alone is one of the hardest things for many about living with a chronic condition.
Thank you for reading.
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November 13, 2014 at 2:11 am
StephenS
Please don’t forget that awareness is a big part of Diabetes Awareness Month. You just helped bring awareness by telling your story. I’m sorry that this event was a chapter in that story. Hope you’re feeling better soon.
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November 13, 2014 at 3:29 am
Karen
It’s so important that we share the raw, real, total crap side of diabetes too. I’m sorry you felt like this, but I admire how openly you shared. Sending you a huge hug.
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November 13, 2014 at 4:41 pm
melissabalandlee
I get it. You’re not alone in this. We get it.
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March 19, 2020 at 2:13 am
A
There’s not a single day when I don’t hate it.
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