The other day , I sat in a horseshoe shaped room and on a curved screen that wrapped around the room watched a video of a house and garden. The room was dark and as I concentrated on the moving images, I forgot about the other people in the room. The people sitting on the stools around me ceased to exist as did my companion who was sitting next to me unless he shuffled in his seat or leaned over to murmur something.
I was alone, focused and unable to be distracted by anything around me. The pictures were vibrant, stunning, bright. I was swallowed into the screen and felt myself wandering the gardens and peering into the rooms. I wasn’t a visitor or a viewer, I was in there; an active participant.
At the moment, I don’t really feel like I am an active participant in my diabetes management. I feel like I am on the outside looking in and am very easily distracted to think about anything but.
Right now, diabetes is taking a back seat as I deal with other far more emotionally encompassing issues. I am still coming to terms with the pregnancy loss I experienced almost four weeks ago and some subsequent concerns. I’m angry at diabetes right now, which is irrational given that it had nothing to do with the miscarriage. But I need something to blame, and I can grab onto diabetes; hold it up as the culprit. My faulty pancreas is taking a bashing at the moment as the scapegoat I need to try to make sense of what has happened.
But I know that this can’t go on forever and sooner or later I need to start to deal with my diabetes again. I am writing about it a lot, but I suspect that is a way for me to give it prominence and know that I am at least thinking about it.
It is times like this that having loved ones around who care about me and my diabetes can be a double-edged sword. While I am fiercely independent and can’t stand the thought of someone peering over my shoulder asking about my latest BGL , I probably do appreciate some concern and perhaps a little extra gentle involvement. I know that they are reluctant to step in, fearing my further withdrawal as I stupidly try to prove my independence. The truth is, right now, I need them to step in.
It’s a balancing act, because if your loved one with diabetes doesn’t usually welcome your help, how do you step up a little without attracting their anger? Testing the waters to see what level of involvement would be welcomed is probably the first step. If you’ve noticed that your loved one isn’t checking their BGLs very much – or at all, maybe asking if you can retrieve their meter from the depths of a handbag is a first step. Or if you see that the last spent CGM sensor has not been replaced, asking if there is a reason that they have not replaced it may have them talking about why they need a bit of a break from all the data. But at least they will be thinking about the rationale behind their actions.
Perhaps offering to take care of keeping hypo stores stocked or making sure that there is enough insulin in the fridge would be welcome. And inquiring about any upcoming medical appointments and offering to accompany them – with a promise of lunch or coffee – is a lovely idea.
Everyone is different and what works for some would not be appreciated by others. Often, when we are going through tough times – whatever they may be about – we are not looking for others to provide solutions. We don’t really want advice. We just want to know that people care, are standing by us and, if necessary, will help if asked. Hopefully, the period will pass and soon enough they will be once again an active participant in their diabetes management. But until then, be gentle, be involved and let them know that you are there. They will appreciate it. They really will.







6 comments
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August 9, 2013 at 2:58 pm
Ashley
I was around at the office the other day and had hoped to deliver a hug but you weren’t around! So here’s a virtual hug for you.
xx
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August 9, 2013 at 3:01 pm
Renza
Oh – I’m sorry I missed you. Would have been lovely to catch up..
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August 9, 2013 at 3:19 pm
Ashley
We could catch up another time, I’ve got my next placement not far from you for the next 10 weeks. I think cupcakes and coffees are in order!
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August 9, 2013 at 3:21 pm
kerrie
I always love reading your Blog Renza 🙂 not being the one with Type 1 and “only” being the parent is and can be challenging, and am guessing with increased age increased challenges 🙂 as I have other teenager boys in our house and wow thats fun:) and they dont have type 1, I have learnt to just do it whatever that maybe, fluff around the edges make suggestions or whatever, however I plan not to just let our sons d be ignored 😦 in the hope it will vanish, gee we all wish that would happen. currently we have a son whom is happy to flop down the tester and tell us to do it!! but oh wow dont ever ask to check his pump!! that is now part of him, – reading the downloading with him is always a fun experience 🙂
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August 9, 2013 at 4:27 pm
Cas
Hi Renza
Another post from you that rings so true to me!
My daughter was diagnosed at 14 y.o. and we had such a roller coaster of emotion , quite understandably ,for a couple of years. We were told in no uncertain terms to back off . We obviously couldn’t totally do that but, as you said in your post had to find a balance of hovering on the sidelines watching her and more active support. Really hard.
Now I am so pleased to say that she has made her way through and is managing pretty well. She actually rang NDSS for new consumables last time and is organising her clinic visits on her own!
We got there. You know when she actually recently turned and said to me ‘mum, there are worse things around than diabetes’. I nearly cried.
Hang in there Renza. Thanks for your posts.
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August 9, 2013 at 6:15 pm
Mairi-anne
another fantastic/yet subtle post xx
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