Back in March of this year, Austroads and the National Transport Commission released their updated Assessing Fitness to Drive; medical standards for licensing and clinical management guidelines. This document refers to commercial and private vehicle drivers, so the information is relevant to people living with diabetes that hold (or are planning to hold) a drivers’ licence.
I live in Victoria, so our licensing body – VicRoads – requires that I complete a medical review form every two years. This is done in consultation with my doctor, and the form asks about hypos, changes in eyesight and other issues that may impact on my ability to drive safely.
Because I’ve had few changes in my diabetes that have affected my driving, filling in and returning this form is a pretty straight-forward matter. As long as the completed form is returned to VicRoads by the due date, I’m given a ‘conditional licence’ and I’m good to drive for another two years.
So I was expecting that the new Assessing Fitness to Drive guidelines would not really need much consideration. The guidelines cover some important things about diabetes and driving. There’s information about hypoglycaemia and impaired hypo awareness and a rather confusing flowchart to explain the processes to getting a conditional licence.
But then, in the section titled Medical Standards for Licensing we come to section 3.3.2 Satisfactory control of diabetes which states:
When assessing whether the criteria for a conditional license are met, ‘satisfactory control’ of diabetes will generally be defined as a glycated haemoglobin (HbA1c) of less than 9.0% measured within the preceding three months, as against a general goal of less than 7.0% in people with diabetes.
Whoa! What? Does this mean that if for any reason an individual’s HbA1c is above 9%, their treating doctor may refuse to complete the review? Well, apparently yes. I have been contacted by several people with diabetes who have had their licence suspended because their treating doctor refused to fill in the review based only on their above 9.0% HbA1c.
Where is the evidence suggesting that an elevated A1c will negatively impact on driving ability? I have searched and simply cannot find anything. Some people may experience blurry vision with elevated BGLs, but that is usually short-term, and ‘fixes itself’ once BGLs lower.
I can find a lot of journal articles about the danger of driving for those experiencing impaired hypo awareness. But nothing, nada, not a thing about driving with an A1c of 9.0%.
I’d like to know where that magic number came from. How is 9.0% deemed unsatisfactory control of diabetes, but not 8.8%? It appears to be an arbitrary number value that is having considerable impact on people with diabetes holding a drivers’ licence.
Disappointingly, there was no consultation in the development of these guidelines. Yes, the diabetes chapter of the guidelines were reviewed by the Australian Diabetes Society Driving and Diabetes Working Party. There was absolutely no engagement with any Diabetes Australia body across Australia. Which meant that there was no one considering the consumer side of things. All input has come from clinicians who, at times, have little understanding of ‘real life’.
Diabetes Australia is seeking clarification of these guidelines and I’ll keep you posted with what I find out. But in the meantime, if you have been unable to get your licence renewed because of these new guidelines, let your local Diabetes Australia office know.
Have you been affected by the new Assessing Fitness to Drive regulations? I would be interested to hear from anyone who has.
22 comments
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August 22, 2012 at 5:50 pm
Mairi-anne
It seems “some one”made a decision without checking… where di they pluck that magic number from. I am so glad we have people like you renza, searching and picking up on things like this….
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August 22, 2012 at 6:05 pm
Diabetes Australia – Vic
Reblogged this on Diabetes Australia – Vic's Blog and commented:
Over on Diabetogenic – Renza takes up the fight about the new Assessing Fitness to Drie; medical standards for licensing and clinical management guidelines. Have you been affected by the guidelines? Let us know mail@diabetesvic.org.au
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August 22, 2012 at 7:29 pm
Fraudster
Have to say I was mightily pissed off at having to have this review in the first place given how many truly impaired people are out on the roads – like my elderly neighbour, who today asked me to reverse her car out of her garage & drive cos she couldn’t manage it. When is her driving review happening given she’s 80 plus?? But she doesn’t have D so she’s okay.
Now I’m thinking one of my colleagues had the right idea in keeping her Type 1 a secret from Vic Roads when we were all being urged to turn ourselves in as ‘diabetics’.
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September 5, 2012 at 7:13 pm
Ian Graham
Unfortunately, not revealing you’re diabetic would result in the police and the insurance company pinning a “driving while unlicensed” on you if you were involved in an accident!
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August 22, 2012 at 7:37 pm
gina
I had my license suspended for a whole year under this rule, and am currently at risk of it happening again in a few months. Without sounding like a child throwing a tantrum, it is a completely unfair rule without any evidence to back up the terrible impact it has on diabetics with higher a1cs. I cant believe that this has been allowed to happen with so little opposition.
Singling out diabetics with higher a1cs as not being able to drive, is humiliating and has an extremely severe impact on independence and quality of living. I already don’t drive when my bsl is high because I’m not allowed to, and dont feel safe to. That is a day to day decision I make. I dont need a doctor deciding based on a single blood result, banning me from driving indefinitely.
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August 22, 2012 at 9:29 pm
Bronwyn Bell
In NSW we MUst fill inthe yearly, my licence was suspended for 6 weeks a few years back as I was experiencing unexplained night time hypos (mind you, not while driving, which I normally do in the daytime). AS a result, I now do not record everything or tell everything to my GP. I no longer see an endo as this was where my suspension came from. I know myself and my main support is my darling hubby, who says when he thinks i need to address health, though I’m one to address health issues as they come. I have no serious complications and the only medication I am on is insulin – how hard do they want to make an already challenge-filled life! Though I like a challenge, taking away driving will make us disabled!!
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September 25, 2012 at 8:47 pm
Cassie
Just so you know we diabetes are already classed as disabled, I know this and I’m not even old enough to drive yet
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July 14, 2015 at 10:52 am
R
Hi Bronwyn, I’m about to renew my licence in nsw and I’d like to know how you’ve handled this since your post in 2012.
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August 22, 2012 at 11:25 pm
jo clutterbuck
This is a case of discrimination. Do other medical conditions have the same restrictions? Would you have your licence suspended if you wear glasses and your eyes have deteriorated, I think not. Renza you have the D community behind you, lets change these ludicrous rules!
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September 26, 2012 at 7:31 pm
Siobhan McGinniss
I agree, discrimination is a word that I think we should all use when we all contact the national transport commission to express our displeasure. I am a type 1 (37 years and counting) with an HBa1C of 9 for the last 10 or so years. I have no complications that would impact on my driving ( as evidenced by the fact my endo signs and completes the vic roads medical form). Why should the fact that my HBa1C is high suddenly mean I am not safe to drive now, when it has not changed for years? My job involves a lot if driving, and always has. Will I then be eligible for the DSP or another form of income support because some ignorant bureaucrat makes some arbitrary decision, I think not. Let us know what we as the D community can do to make sure our complaints are heard. Thank you Renza for being our voice.
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February 21, 2015 at 6:14 am
Juliana
Well I am a diabetic and every two years have to get Drs to fill the required form from vic roads as I wear glasses. Perhaps vic roads need to check everyone that wear corrective lenses these days. I feel discriminated against as my license will be sent to me with “S” on it.
Why don’t they brand us on our forehead? Disgusted.
Juliana
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August 23, 2012 at 1:06 am
Tracey
I have only been a “D” for 15 months and turning 40 later this year. Ii live in WA and have to fill out forms from the doctor every two years. this scares the crap out of me , make me think I should hide things from my doctor….. I would be totally devastated if I couldn’t drive. I have never had an accident or speeding ticket nothing yet I could have a few bad months and have this happen. Is every states standards different?
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August 26, 2012 at 12:32 pm
Sara
Wow. That is crazy. But now I’m thinking about it. What A1c number would we say is too high? I wonder what the science is about high numbers are reaction time or falling asleep behind the wheel (I get sooo tired when high!)
The only thing I “had” to do was tell them I have diabetes. It is printed on my license. No additional tests or doctor’s reviews (in Florida).
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September 6, 2012 at 7:18 am
Scott K. Johnson
Wow!
I have to have my endo complete a form every couple of years here in Minnesota, but there are not numerical guidelines other than his assessment on whether I’m fit to drive.
If they’re going to limit people who are high, shouldn’t there also be a low limit?
Ugh.
Good conversation here. Lot’s of good points.
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September 8, 2012 at 9:24 pm
TJ
It seems you need to find out what was contributed by the following in relation to diabetes according to the document.
CONTRIBUTING HEALTH PROFESSIONAL ORGANISATIONS
The following organisations contributed substantially to the review process:
Australian Diabetes Society
Someone, somewhere has decided A1c of =>9.0% is bad and I’m not surprised given the cotton wool covered, nanny state that we live in where individual responsibility is irrelevant.
It’s complete rubbish of course, but you’ll never get a bureaucrat to rescind this now its in writing and published.
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September 16, 2012 at 10:15 pm
Nic
I discovered I have type 2 few months ago and I just obtain my driver’s license.
Now that I found out that I need to report my condition to VicRoad, I am so scare now that they will take away my license which will seriously impact my life and my family’s.
Oh God, please don’t let that happen. I’d kill myself.
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September 26, 2012 at 7:42 pm
marc5000
I think as a Diabetic and if I am in regular care of an endo than there should be no need to have these assessments done. If I become unfit to drive then my doctor should be advising the authorities. (Like dementia or Alzheimer’s these take doctors years to detect and pull people off the road) Why are Type 1 Diabetics discriminated against with the amount of care and monitoring advancements available now?
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September 28, 2012 at 3:16 pm
dinah
So will the Austroad and Transport commission also introduce a 3 month average for blood alcohol? I can drive the car today with a blood sugar reading of 20 and then have the next 3 months with blood sugars well controlled and HBA1C of less than 9…. How does this work again? But if I drive my car today with a blood alcohol of 0.07 and I am caught then I am immediately penalised.
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November 19, 2012 at 7:56 pm
dinah
Taken from National Transport Commission
Update 16th November 2012:
Following consultation with medical advisor’s and the Australian Diabetes Society, the National Transport Commission has prepared revised wording to clarify the guidelines on ‘satisfactory control of diabetes’ within Assessing Fitness to Drive. The revised wording will be submitted to the heads of state/territory transport departments and roads authorities for formal approval.
If approved, the additional text will appear in the electronic version of Assessing Fitness to Drive, available from the Austroads website (http://www.austroads.com.au/)
The revised wording further clarifies the intent of the guideline as not an absolute requirement, but rather an indicator for the need for further assessment.
[1]Please note: under the previous version of Assessing Fitness to Drive, people who had a HbA1c level of more than 7% were at risk of having a doctor find that their diabetes was not “well controlled” due to a lack of guidance.
[2]For example, in the United States of America, the American Diabetes Association recommends a target of less than 6.5%.
[3]See for example the table on page 12 of the Autumn 2008 edition of Dtour Magazine, the magazine of Diabetes Tasmania.
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January 25, 2013 at 11:23 am
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May 25, 2015 at 3:48 pm
Kuini AFOA
I’m glad I’m not the only one who has this problem! I mean, my husband had just that one problem with his blood results with it coming back a 11 and then our Dr wouldn’t sign it and now he has 2 weeks to find out if he gets his license or he’s getting fired. It sucks, he’s still in his probation period for work and he absolutely LOVES his new job and now he might be losing it because of this one stupid thing for his medical certificate for his license. It sucks! We’re hoping to take his 3rd blood test to see if he’ll get a result of 9 in the next week or so.
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