I’ve spent the morning at a health professional symposium (#HPSymposium) coordinated by two diabetes organisations in Victoria. The event brought together about 200 health care professionals interested in hearing from some outstanding speakers, including three speakers from the ACBRD.
To have people speaking about diabetes emotional wellbeing front and centre at a health professional conference is a breath of fresh air. And to have three inspirational speakers talking about the importance of measuring emotional wellbeing and providing strategies for interventions gives me hope.
Why? Because finally we’re talking about diabetes in more than just clinical or biomedical ways. We’re acknowledging the ‘living with it’ aspects and asking (demanding?) that these issues are considered.
How do we explain life with diabetes? How do we adequately explain it’s about more than numbers, monitoring, medication, food, attending doctors’ appointments?
We can try to represent this by adding up the number of injections, or BGL checks or pump line changes we do in a week, a year, a lifetime; but does that mean anything to anyone who hasn’t injected themselves daily, checked their BGL or stabbed themselves with an introducer needle to get a pump line in? (A stat from one of today’s presentations – on average, a person with type 1 diabetes for 40 years will have had 3,500 hypos.)
I am supported by the most incredible family, friends and work colleagues, but do they really understand what living with diabetes means? And is it fair for me to expect them to? The way they show me their love, understanding and unconditional acceptance is perhaps their way. And that is more than enough for me most of the time.
What do I want people to know? It’s simply this: my diabetes is exhausting. But I am living a life of which I am proud. If you need to find a way to measure me – please look at the people in my life, the things I’ve achieved, the places I’ve been and the places I’ll be going. Please don’t look at numbers. They tell you nothing.
This is my Friday entry into this year’s Diabetes Blog Week. For information, click here. And I really recommend you do. Over 200 diabetes bloggers from all over the world are participating and it’s a great way to see what others with diabetes are talking about. Come back tomorrow for Saturday’s entry.








8 comments
Comments feed for this article
May 18, 2012 at 4:59 pm
mairi-anne
EXACTLY…. Tess is not a number to you to me or anyone she is a child living with a disease, that tries to make her different, tries to defeat her, tries to fight her BUT loses EVERY day.
LikeLike
May 18, 2012 at 5:13 pm
Jo Watson
That’s lovely Mairi-anne. Thanks Renza. The other day I tried to explain to the president of the local junior footy club why I can’t take on the role of social co-ordinator. I told him that I was caring and advocating for family members with disabilities, parenting, trying to complete a PhD and working way more than my paid 3 days a week. I wanted to also tell him that on top of that I was managing a disease that sometimes just wouldn’t say no for an answer. I didn’t though, because I felt he just wouldn’t get it, and I would sound quite pathetic really! Some days, not all days, but just some I would really like people to understand how exhausted I am. x
LikeLike
May 18, 2012 at 11:13 pm
fingerpricker
Renza, there really should be more people like you working in the areas that you work in around Australia. Thankyou! for being our voice.
LikeLike
May 19, 2012 at 2:17 am
Pearlsa N. B. (@adjoa)
OMG, what a great post. I especially love this part
“What do I want people to know? It’s simply this: my diabetes is exhausting. But I am living a life of which I am proud. If you need to find a way to measure me – please look at the people in my life, the things I’ve achieved, the places I’ve been and the places I’ll be going. Please don’t look at numbers. They tell you nothing.”
http://pearlsa.com/blog/
LikeLike
May 19, 2012 at 3:27 am
Mocha
Love this. Love. Love. Love.
LikeLike
May 19, 2012 at 7:23 am
Sophie Harrison (@Sophiah_7)
I completely agree- I put the ‘subtitle’ for my blog as “beyond the numbers”, because I do think it is so easy for doctors, parents etc… to view it as a numbers game, and they can forget that underneath it all there is a person there! Not criticising them or anything, as they are amazing, but you are right about how it is so much more than numbers. My doctor’s will look at by hba1c and be like “too many hypos” – do they think about anything else?! What about all the things i’ve done this year such as having my first part-time job, good grades etc… so yes, mini rant over! Really glad I got to read this – love your blog 🙂
LikeLike
May 19, 2012 at 11:09 am
Sara
I LOVE that last paragraph. I need it on a poster or something!! So perfect.
LikeLike
May 20, 2012 at 10:09 am
deminkspot
Great post. I’m exhausted too. I’ve been struggling with gastroparesis. I ‘ve passing out for 6 months (9 x I counted) and my CDE kept saying my BG was too high (well it was, in the 200s) she knows I have gastro , no longer have medication for it – but does she mention it? Does the doc? I find help from my friends online. It was draining the amount of time I spent doing research. And people comment that I’m sick because I’m not taking care of myself. The nerve. I now find myself with the God given opportunity to forgive – repeatedly – lol.
LikeLike