I met someone the other day – a friend of a friend – who had recently been diagnosed with type 2 diabetes.
Within the first 15 minutes of our casual conversation standing in the street as the Saturday morning rush happened around us, I heard these words from their mouth:
‘It’s my own fault. I should have gone to the doctor sooner.’
‘I am not a good diabetic at all.’
‘I am doing a really bad job checking my bloods.’
‘I’m not sure how long I need to keep checking my bloods. Or how often, really.’
‘I was told if I didn’t look after myself I’d need injections. I’m terrified of needles.’
‘I have a list of foods that I should and shouldn’t eat.’
‘I’ve never been sick before. And now I feel as though people think I am sick. But I feel fine.’
‘The doctor said I don’t have diabetes too badly, but then told me all the things that could go wrong.’
‘I am scared. I don’t know anything about diabetes, but I am scared that I am going to go blind. I was told that’s what would happen.’
Here was an incredibly confident, capable and clear thinking person, not much older than me. Until now, their contact with HCPs had involved annual flu jabs (kudos for that!) and a trip to the GP for the occasional virus. They told me they’d never spent a night in hospital.
The diabetes diagnosis came about after their GP suggested routine blood checks on the day they went in for their flu shot. The following week, they were told they had diabetes. This was just last week. So far, this person had spent about fifteen minutes with their GP and 45 minutes with the diabetes educator who works out of the clinic.
And look at how diabetes has been presented in that time. Already, this person feels as though they are a ‘bad diabetic’ and failing in their treatment. And they are scared.
I responded to some of those comments gently:
‘You DID go to the doctor – for your flu shot. And when they suggested you have a blood check, you did it there and then.’
‘You are doing a great job. There is no such thing as a bad person with diabetes. We do the best we can with the information at hand.’
‘This is all new. You are checking your blood sugar and that’s amazing. Well done. You didn’t have to even think about that two weeks ago!’
‘Do you have a follow up appointment? When you go back, as why you are being asked to check at the times they’ve suggested. And if this is something you’ll need to do for the next week…or month…or longer.‘
‘It’s perfectly understandable to be afraid of needles. I don’t know anyone who likes them. And you may need insulin one day. But not yet. And if you do, that’s not because you have failed. It’s because diabetes needs to be treated and sometimes with type 2 diabetes, (and always with type 1 diabetes) insulin is that treatment.’
‘Have you been referred to a dietitian? It’s really hard to change the foods you’re eating if you’re not sure about diet. Ask for a referral.’
‘I don’t really think of having diabetes as ‘being sick’, so I understand what you mean. But you will need to think about your health differently. That doesn’t make you a sick person, though.’
‘It’s perfectly, perfectly understandable to feel scared. If you think that having a chat with a psychologist or counsellor will help with that, ask your GP.’
‘Also … find some other people with diabetes and talk with them. Here’s my number. Call me any time.’
Imagine, if instead of feeling the way they were feeling, this person felt empowered, confident and assured – even if there was a bit of fear and uncertainty in there.
On the day we are diagnosed, we walk into the GP’s surgery not having diabetes. And walk out with a diagnosis.
It starts early. Those messages at diagnosis can impact how we feel about our diabetes for a very long times – indeed the rest of our lives.
3 comments
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June 19, 2018 at 4:11 pm
Kate
This a wonderful post. If only more people could be supportive in this way.
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June 20, 2018 at 10:27 am
Rick Phillips
It reminds me of a single mom of a kid with T1 I met. The boy had diabetes for 6 years. She was completely overwrought about diabetes. She hated pumps, refused to put a CGM on him and basically was in denial about diabetes. When I met her she told me how bad she she was a mom and a mom of a T1.
All I could say was that it was not true. I tried to assure her that no one is a perfect D, and no one knows it all. My words fell on deaf ears. Perhaps some care would have been a better way to proceed. Better for the child, better for her, and in the better for those who will deal with him when he gets to be an adult with diabetes.
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July 5, 2019 at 3:15 am
carmygee
Amen and amen. In my opinion there is so much prejudice and ignorance within the medical community. For example; I went to an ophthalmologist for an annual exam and they scolded me about my A1C. Then there was the time that the person taking my vitals told me she had diabetes too. When I asked her what type she got a blank look. She had no idea what I meant. So even if you have the most wonderful introduction there is still a lot of uninformed medical professionals you will encounter.
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