It’s day one of the eighth annual #DBlogWeek, created by Karen from Bittersweet Diabetes. This is the sixth year I’ve taken part and it’s a great opportunity to not only write about some truly interesting topics, but also a chance to read some blogs you may not otherwise. Make sure you check out the list for today’s posts here.
Today’s prompt: Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected?
There are things in this world that are predictable. The early evening darkness that descends as soon as daylight saving ends each April; the desserts of warm crumble in front of the fire as soon as the weather cools down; the taste and jolt of the first coffee of the morning; or the way the puppy runs around in circles for a good five minutes once she’s let into the house when her people arrive home after a day at work.
The predictability is comforting. I like comforting. I like predictable!
Because then…then there is diabetes. Diabetes doesn’t do predictable. In fact, my diabetes laughs in the face of predictable. It seems to take great delight in waiting until the exact moment that I start to feel comfortable and confident that something is sorted and working in a certain way, and then throws me a curve ball, messing up any notion of security.
Being prepared can help though, although if I were to truly be prepared for any and all possibilities diabetes has in store, I’d never leave the house – or only ever leave carrying a suitcase and medical team. However, there are some little things that I do routinely that do make those unexpected situations a little easier to manage.
My ‘diabetes spares bag’ is always in my handbag and is probably the thing that saves me most. I wrote about how it came to the rescue a few months ago when I got to work and realized I’d forgotten to attach my insulin pump (it turns out that sixteen years of pumping is no guarantee that I’d remember to actually connect the bloody thing in the morning). Again, this is what my spares bag looks like:
And that pretty much takes care of most contingencies for a device malfunction. Empty cartridge alarm? No problem – swearing and spare insulin vial and spare cartridge can take care of that. Pump line snagged on door handle and ripped from body? Swearing and spare infusion set can take care of that. Dead battery alarm? Swearing and spare battery has that sorted (and the five cent piece in there will open the battery cap without much effort). Insulin pump left on the bathroom vanity? So much swearing and spare insulin vial and syringe will take care of that.
This little bag has helped me out of diabetes messes more times that I care to remember.
I consider having a well-connected and easy-to-reach endo an absolute essential for the unexpected. I’d never call her out of hours for something trivial, but I have reluctantly used her mobile number in case of emergencies. For example – the time I was in hospital and the A &E staff wanted to take away my pump, blood glucose meter, insulin and dignity. Or the time I passed out from a hypo and I needed her to convince the paramedics that I didn’t need to be taken to A&E – and could manage at home myself. She’s an insurance policy like to other in those moments of desperation.
To be honest, the times that I am most surprised by diabetes isn’t when it does something unexpected. The unexpected is actually normal. The times diabetes surprises me is when it is just ticking along quietly doing its thing and letting me tick along quietly and get on with things. I become most suspicious and wary, waiting for it to get back to doing its thing: being an impulsive, random, fickle pain in the pancreas.
26 comments
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May 15, 2017 at 1:01 pm
Bec
I feel exactly the same about the whole thing, swearing included. Love your emergency bag, I should put one together.
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May 15, 2017 at 1:09 pm
RenzaS
Thanks Bec! After being caught out a couple if times, I realised just how simple it was to pull together this bag. I’ve been carrying it around for a while now and it is very, very useful!
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May 15, 2017 at 1:14 pm
StephenS
I’m glad I’m not the only one who swears. 🙂 This is my sixth year participating in Diabetes Blog Week too!
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May 15, 2017 at 1:17 pm
RenzaS
Thanks for reading, Stephen! Looking forward to reading your posts this week.
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May 15, 2017 at 3:02 pm
bec3116
I walked out of the house without my pump attached on saturday just gone. It happens more than I would like to admit. Perhaps my subconscious wants me to live a non-robotic-like existence for a few hours and that’s how it achieves it? But the words that came out of my mouth when I noticed my pants were not askewnas they usually are and I began to reach frantically around my wasteline feeling for the pump to have somehow found its way out of its normal routine positions on my pants’ waistline, were not for the faint hearted. Thank god for the syringe and bottle in my bag – yes disaster averted #1 but I must also add thank god for my amazing parents who upon finding my pump go out of their way to insist they bring said pump to me even though it is not necessary. Love you mum and dad xxx
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May 15, 2017 at 3:09 pm
RenzaS
What wonderful parents! Looks like swearing at diabetes errors is par for the course! Thanks for your comment and for reading, Bec!
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May 15, 2017 at 6:38 pm
rachelzinmanyoga
I am so prepared I feel OCD about it sometimes but it’s necessary the few times I’ve been unprepared it’s been a disaster! As always I love your writing. Makes me smile!
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May 15, 2017 at 6:52 pm
RenzaS
What a lovely comment. Thank you, Rachel. And good on you for being prepared!!
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May 15, 2017 at 9:08 pm
Helen Edwards Creates
great post – my diabetes bag in my handbag is about 5 times the size of yours, but then I am the queen of being prepared for the unexpected! Like you I love some predictability but I am also strangely very impulsive! I agree that when diabetes is playing quietly I am always suss…the same way as with the kids
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May 15, 2017 at 9:58 pm
Type1Bri
Great blog, loving your work. Diabetes blog week is such fun, I’m enjoying my first year participating
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May 15, 2017 at 10:00 pm
RenzaS
Thank you! Enjoy the rest of the week. The time zone differences mean I sleep very little, reading late into the night!!
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May 15, 2017 at 10:52 pm
Kelley
So true about how the unexpected is normal! Great post.
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May 15, 2017 at 10:55 pm
RenzaS
Thank you, Kelley.
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May 16, 2017 at 1:02 am
Briley
I’m trying to be a super rule follower with my pump right now since it’s a new-to-me brand, so I suspend it while I take a shower. I definitely would have forgotten to put it back on yesterday had it not been singing the song of its kind in my laundry pile!
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May 16, 2017 at 7:49 am
RenzaS
Ah!! I used to do that too. Thank for the reminder – maybe I should try to remember to suspend. Thanks for reading, Briley.
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May 16, 2017 at 3:19 am
Karen
Ah yes, all the swearing!! I forgot to mention that in my post but it’s definitely a huge part of things!!!
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May 16, 2017 at 7:48 am
RenzaS
So glad it’s not just me. Great topics this week, Karen. Thank you!!
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May 16, 2017 at 6:43 am
Meri
Swearing always takes care of the emotional side of things. “Swear and release.” It should be on a T-Shirt.
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May 16, 2017 at 7:47 am
RenzaS
I’d wear that! Thank you for reading.
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May 16, 2017 at 10:28 am
adiabeticabroad
Swearing. Absolutely vital.
Also, it’s so true… I side-eye the hell out of diabetes on those days when everything goes right.
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May 17, 2017 at 11:59 am
RenzaS
I’m seeing a theme with the swearing here! Thanks for your comment.
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May 16, 2017 at 11:33 am
Colleen
Way back – a few years ago, I was at a luncheon. Did the d-thing and tested with my One Touch Meter – and set up the bolus for my Animas Pump. Meter said, “pump not found.” Duh – it was at home sitting on my bed. Hasn’t happened again but – who knows!
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May 17, 2017 at 12:00 pm
RenzaS
Oh, no!! I felt so silly forgetting my pump. I mean I’ve had a pump been attached to be every single day for the last 16 years….
Glad to know I’m not the only one! Thanks for reading.
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May 16, 2017 at 1:42 pm
Rick Phillips
Like some here. I left the house with the pump on my belt, the set in my skin, the reservoir in the pump but well, no line. Yeah, 17 years no line. Give me a break Rick, things work better when things are connected. Believe it or not.
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May 17, 2017 at 12:01 pm
RenzaS
‘Things work better when things are connected.’ Excellent advice there, Rick! Thanks for your comment – and, as always, thanks for reading!
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May 18, 2017 at 6:05 am
Blood Sugar Trampoline
The swearing is absolutely ESSENTIAL:-D
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