Recently, I was slightly shocked at a comment made while I was enjoying a pleasant lunch.
‘A is pregnant,’ came the announcement.
‘Oh, that’s lovely,’ I said. Although I don’t really know A, I was still very pleased for her.
‘Really? I’m not sure if that’s such a good idea considering her health condition. What if she passes it on?’
Now, if I had any sense of decorum or tact, I would have stopped right there and changed the subject. Or left the table, suddenly desperate to visit the bathroom. Or become focussed on the pattern on the table cloth. Or thought about the dessert that was about to be served. I would have done anything other than say something.
I am not that person.
‘You’re kidding right?’ I said, prickly with anger. ‘Do you know how many times I’ve been told that? Do you know how many times people have inferred that I am selfish for having a child – and trying to have more – because of my diabetes and the possibility that I could have passed on my crappy genes?’
I was annoyed at myself for saying anything. My kid was sitting opposite me, listening to every word I said. She may not have joined the dots between how A’s health condition could impact her a baby, and me with my health condition impacting my baby (i.e. my kid). I’d just made it abundantly and painfully clear, however.
‘I’m sure that she’s getting really good advice and that she is on top of it. But I’m thrilled that she is having a baby if that’s what she wants and it sounds like it is. Not that long ago, she wouldn’t have been able to. Just like women with diabetes couldn’t. I really hope she is feeling well and has lots of support around her.’
This conversation happened a number of weeks ago and it is only now that I am ready to speak about it; to write about it. I was terribly upset at the time – the topic is very sensitive and clearly, more than 12 years after our girl was born, I still struggle with the perception that others may have: I was selfish for having a child because I could pass on diabetes to her.
But the more I thought about it, the more I realised my feelings are very mixed up. Along with the anger flashing in my voice, there is guilt. I have so much guilt about the chances of passing on diabetes to our daughter. It terrifies me, and the fear can be overwhelming.
Living with diabetes meant having a baby was not a particularly straight forward matter. The decision to actually go ahead took a lot of soul searching and discussion. The actual getting pregnant took time, effort – and great pain as I lost babies. Yet, I never had a baby because I was being selfish. I did it for a lot of other reasons, but being selfish was not one of them.
And rarely a day goes by when I don’t consider the impact my decision could have on our girl. Perhaps I don’t like to be reminded of it which is why I reacted so stormily. Or perhaps I am still just really, really scared.
8 comments
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February 7, 2017 at 1:16 pm
Annabelle Leve
Fear and guilt, fear and guilt … I had my second child at age 43, after having Diabetes type one for 32 of those years. I grew up never believing it was even possible to have a healthy child, let along two, let alone have one in my early 40s. But the fear and guilt of her having diabetes is actually overwhelmed by the fear I have that I will not be around for her when she needs her mother – at the tender age of 7, and my son at 21, I am grateful for every moment we share, but terrified at the thought that I won’t be around for ever – perhaps every mother’s fear, but all the more so when you’ve lived with a virtual death sentence since the age of 11. As you say Renza, we do feel the guilt, even whilst defending our decision! (and right!) to procreate.
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February 7, 2017 at 5:26 pm
skchrisman
Yes, yes, every mother’s fear. Every. Hugs to you too, Annabelle!
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February 7, 2017 at 5:25 pm
skchrisman
While I don’t have diabetes, my girl asked me if I would have had kids knowing what I know now about our genetics. After my heart started again, I told her I felt like I had a good life, and I thought I was giving them a good life too – even if it did come with some pretty crappy genes. So far she doesn’t believe the broken bits of her outweigh the downright awesomeness of the things that do work well.
Your girl is a miracle and a blessing, as are you! And from afar I can only imagine you are a smashing success in giving her an amazing life – whatever happens to come along with it.
I’ll always defend my decision to make a beautiful life. What a lonely place this would be if we made decisions based on the what if’s.
Hugs to you and yours.
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February 7, 2017 at 6:12 pm
Annabelle Leve
That’s beautiful, thanks – brought a tear or two…
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February 7, 2017 at 6:02 pm
Jen Ridley
I have all of these feeling too. I gave birth to 2 healthy boys, 38 and 36 years ago after having T1 since age 11. Believe me, the same feelings arise a thousand fold when grandchildren are born. So far, I have 6 healthy grandchildren and another due soon. The guilt and dread are the worse feeling ever. I keep hoping a cure is close, won’t be in my lifetime but in theirs. My original intention in writing this was about the aloneness I felt when I announced my pregnancy after trying for 3 years. I came from a small town where everyone knew everyone’s business and I was the talk of the town (I was married, it was the Diabetes that was the issue). All I wanted was for one person to say congratulations. I got my wish, only one person did and she wasn’t even a family member. So if you know someone with T1 who announces their pregnancy please say congratulations. It will mean the world to them.
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February 7, 2017 at 10:45 pm
Actually Mummy
People just don’t think, do they. They don’t ever put themselves in another person’s shoes. It’s one of my biggest sadnesses that when the time comes for my daughter, pregnancy and childbirth will be one more thing that is harder for her than it is for all her friends. I have such grief over the frustrations and distress she will face in her lifetime, but I hadn’t even considered the judgement of others on her decisions. She’s a feisty girl though – I’m certain she won’t show an interest in the tablecloth when those moments arise!
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February 8, 2017 at 1:31 pm
rick phillips
My wife and I have two sons that we love more than life itself and three grandchildren who are way better than their fathers (hey being a grandparent is the best).
My point is that if I had listened to myself we would never of had our sons and look what I might have missed out on. If my mom had worried, I would not be here. What I know is that it is worthwhile to have children. and we do not need shame to understand the potential outcomes.
We never have needed shame, never.
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February 12, 2017 at 2:39 am
Blood Sugar Trampoline
Thank you so much for writing this. So many people ask me if my kids have diabetes, especially parents of children with d.
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