This post is my September entry in the DSMA* Blog Carnival. If you’d like to participate too, you can get all of the information here.
I’ve blogged before that I have been accused of making diabetes look easy and fun. It’s neither of these things. And I’m not a very good actress either, so it surprises me that people think that. In some of my recent blogs at Diabetes Australia – Vic, I have delved into the darker side of my life with diabetes – specifically the way hypos are changing and how that’s making me feel.
But this week, when yet another person told me that by looking at and listening to me, diabetes can’t be all that difficult I started wondering why. And then I realised. It’s because the ugly truth gets hidden. And I laugh a lot about how hopeless I am at things instead of stopping and really pointing out how they affect me.
Because, if I didn’t laugh, then I would cry!
If I didn’t laugh about my constant dia-mistakes, I would spend every waking minute second guessing my diabetes decisions.
If I didn’t laugh about ‘splurters’ (you know – finger pricks that ‘splurt’ everywhere), I would never wear white tops (and I love white!).
If I didn’t laugh about all the diabetes paraphernalia I need to carry, then I wouldn’t have an excuse to keep searching for the perfect bag (and buying the not-quite-perfect-ones in the meantime).
If I didn’t laugh about (and cheer) the diabetes nirvana that is 5.5mmol/l, then I wouldn’t have an excuse to post pictures of my BGL meter (with said 5.5mmol/l) on Facebook and Twitter.
If I didn’t laugh about being the person with the largest jar of jelly beans and Chupa Chups on her desk, then I would probably feel guilty about the vast quantities of sugar sitting in one place.
If I didn’t laugh at sharing diabetes war stories with my pancreatically-challenged friends, then I wouldn’t feel the community, solidarity and love from these amazing people.
If I didn’t laugh (sarcastically) when people ask ‘Should you be eating that’, then I would probably hit people, (and would have a criminal record by now).
If I didn’t laugh (again, sarcastically) when people refer to me as a ‘diabetes sufferer’, then I would start to feel victimised.
And if I didn’t laugh, rejoice and celebrate at what I am learning from the DOC, then I would feel a lot more alone and isolated.
DSMA is Diabetes Social Media Advocacy. If you don’t know who they are, please have a look here. And follow on Twitter @DiabetesSocMed. For those of us in Australia it’s a way to feel linked to the wider diabetes community. And that, in my opinion, is a great thing!







13 comments
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September 13, 2011 at 12:43 am
Karen G
Terrific post!!! It’s a tough balance, isn’t it? Defending the fact that we can “eat that” and can “do anything” and keeping our spirits up – while still making people realize what a serious and hard disease diabetes is. Thank for reminding me to think about that balance.
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September 13, 2011 at 9:25 pm
Renza
Thanks for your comment, Karen G. The balance is so hard to find, isn’t it? Some days I feel like I have things in equal measures – and then other days the see-saw is tipped and diabetes does seem to overwhelm. Here’s to more balanced days!
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September 13, 2011 at 4:51 am
Heather
Wonderful post. My daughter hides her struggles in attempt to be as normal as possible, for a teenaged girl.
Part of having type 1 diabetes is just dealing with so many (many) people’s ignorance.
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September 13, 2011 at 9:27 pm
Renza
Hi Heather. I was diagnosed as an adult, so didn’t have to negotiate diabetes as a teen. I know that even now I try to minimise diabetes’ impacts to ‘fit in’ as much as possible. Thanks for reading!
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September 13, 2011 at 9:54 am
Cherise
I promise, I’m not stalking your blog. This is my 3rd time reading your post. I almost cried. We really do have to defend ourselves, have a jar of candy and try to balance out life when we drop low. Thank you for sharing and participating in #dsma’s blog carnival.
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September 13, 2011 at 9:31 pm
Renza
Stalk away, Cherise! Thanks for commenting and reading. I enjoyed writing this post for #dsma – and I have so enjoyed following #dsma. It’s made me feel (and realise) that there are so many people out there to support people with diabetes. I’m eternally grateful for that right now!
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September 13, 2011 at 10:52 am
ANDREA
Thanks Renza. I think I get more support from your blogs than my partner does.
As a support team – If I didn’t laugh at how I can tell my partner is suffering a hypo before he has realised (oh that funny slow mo he does and vagueness) then my frustration would just make it an even more unpleasant experience than it must be for him.
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September 13, 2011 at 9:33 pm
Renza
Thanks, Andrea! Your description of your partner’s hypo ‘vagueness’ made me smile. Trying to look at the funny side is so important – for me it helps me try to make sense of something that most of the time makes no sense AT ALL!
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September 14, 2011 at 11:29 am
Jo
Beautiful post Renza. I think it is important to laugh. A little bit of self pity is important, but laughing is so much easier.
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September 21, 2011 at 10:11 pm
Michael S
Nice post Renza! I don’t really relate to the perfect bag part, on because I have found the 3 I need to carry ( grin )
Beautifully done!
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September 22, 2011 at 9:58 am
Renza
Thanks for the comment, Michael. I could say that I am jealous that you have found that perfect bag (or three) but when being honest, I think my quest will be a never-ending one. And I’m not sure that I’m all that upset about that!
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October 5, 2011 at 7:06 am
DSMA Blog Carnial – September Round-Up | Diabetes Social Media Advocacy
[…] wonders why people keep telling her diabetes looks easy- and realizes it’s because she needs to laugh abut it to keep from […]
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October 31, 2011 at 6:55 pm
Facebook hath no fury…. « Diabetogenic
[…] How often have I said to a friend with diabetes ‘Should you be eating that?’ in jest as we dive into our second, third, fourth cupcake? Are the pancreatically-challenged the only ones able to laugh about this condition? I spend a lot of time laughing at diabetes. If I didn’t laugh, I’d cry! […]
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