It’s been one of those days – a nothing day. The roller-coaster BGLs started overnight and haven’t stopped. Nausea hit around 11am only to be replaced with numb lips at 3.30pm just in time for an afternoon hypo.
I hate diabetes on days like today. It makes doing just the most simple, boring tasks difficult and right now after my BGLs have lurched between 2.8 and 22.4 I feel like my head is filled with molasses and my limbs are heavy with lead. I can’t see straight and I can’t think straight.
This is when I want diabetes to bugger off. If I could pack its bag and ship it to a farm, I would. It’s days like today that the silver lining is really hard to find and I am unable to think of anything remotely useful or decent to come out of having been diagnosed with diabetes. It’s days like today that I wish I was ignorant of diabetes and had never heard of it.
This isn’t burnout. This isn’t diabetes distress. I’m generally doing fine with my diabetes at the moment – regular checks, counting carbs, remembering to bolus, paying attention to CGM alarms etc. This isn’t where I do the I’m-so-over-it-I-can’t-deal-with-this-anymore-so-I’ll-pretend-I-don’t-have-diabetes dance which is frequently followed by the head-in-the-sand tango. No, this is just a nothing day where I want to pick up my diabetes, scrunch it in a ball and throw it a long, long, long way away.
It’s for these days that the term ‘invisible illness’ was coined. I’m at work, doing all the things that are expected on a Tuesday. No one is the wiser. Except me. The days that make me feel alone and tired because I can’t hold something up and say ‘look at this – it’s why I feel crap’. These are the days – the nothing days – that it feels like diabetes wins.







6 comments
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October 22, 2013 at 4:27 pm
Rachel
I had one of those days yesterday 😦
Love your blog… Coming from another 30 something, working mother with Diabetes I can always relate.
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October 22, 2013 at 4:27 pm
Renza
Hi Rachel. Thanks for your lovely comment and for reading. Hope today was a better day for you.
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October 22, 2013 at 4:46 pm
emma
I just wanted to let you know that I am so grateful for your blog and for your honesty. I find its on these days we need to be so gentle and caring of ourselves.
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October 22, 2013 at 6:11 pm
Clayton
Hi Renza,
Based on your post you are still using the Paradigm Veo CGM? I recall when you were using this on trial that you mentioned something along the lines that you weren’t too strict on your calibration routine. That worried me because I have been using a CGM 24/7 for 5 1/2 years and I have learnt the hard / expensive way how to calibrate. The rules below may help you with your highs and lows as they will make the CGM more effective. Just to blow my own trumpet quietly, I am a T1D, my most recent HbAlc was 5.1, which was taken during a clinical trial I was involved for Medtronic here in Perth (crossed checked in a second lab). This would not be safe to achieve without a CGM. Also, I am not so young any more and turned 50 recently. 1. Calibrate when you are under 12.5 2. Calibrate when there are no up or down arrows 3. Calibrate when your remaining active insulin is less than approximately 0.5 4. Only eat or inject once your calibration has registered (about 10 minutes after calibration) 5. Aim to calibrate three times a day but better to miss the second calibration (mine is 3:30pm) due to points 1, 2 or 3. The above is a summary of what I have learned from US-based Medtronic staff (very good). Each one of these points is vital to follow in order to get the most accurate readings from your CGM and avoid any dreadful Cal Errors Replace Sensor messages.
Good luck in getting off your roller coaster.
I enjoy reading your blogs.
Regards
Clayton
Clayton Freind
From: Diabetogenic Reply-To: Diabetogenic Date: Tue, 22 Oct 2013 05:16:00 +0000 To: Clayton Subject: [New post] The nothing days
WordPress.com Renza posted: “It¹s been one of those days a nothing day. The roller-coaster BGLs started overnight and haven¹t stopped. Nausea hit around 11am only to be replaced with numb lips at 3.30pm just in time for an afternoon hypo. I hate diabetes on days like today. It m”
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October 23, 2013 at 7:05 am
Kerrie
I love reading your Blog Renza, I sure hope many read it as you are an adult and can most certainly describe in detail how you are feeling and as you said the “outside world” are none the wiser others just look at you and see you looking great. It is a silent illness that really deserves true recognition and understand. Im sorry to have read about your nothing day and Im very sad to say I think there most probably are many others out there that truly understand however they are the “silent many” whom dont have a voice on a media platform.
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October 23, 2013 at 2:08 pm
Bronwyn
feel like I relate just a little too well, or I’ve finally feel like “join the club” is my motto on these days…hope your karma kicks back in with something better sooner than later, love you Renza 🙂
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