Is it too late to say Happy New Year? Probably, but does anyone actually believe that social norms still exist in the world the way it is these days?
And so – happy New Year to you. I’ve been absent. Not that it’s important to acknowledge this. But I have been because headspace these days is non-existent because of (gesturing wildly) the world.
But anyway, here’s an update no one asked for, (actually not true – thanks to all the people who have reached out and asked):
I made a resolution. Happy to hear that many of you have made a similar one. Smart, smart people!
I also didn’t do things: I didn’t start some bullshit diet, because diet culture sucks and is harmful. I didn’t tell anyone what they should be eating, because no one needs that. I didn’t go away for the holidays, because I was so travel burned out that the last thing I wanted to do was jump on an aeroplane.
Instead, I read some great books (Amor Towles, Jhumpa Lahiri, Paul Auster’s final words) and read some not-so-great books (Stanley Tucci – I adore you, but your latest book could have stayed as a personal diary and not been published, mate). Walked lots. Sat outside in cafes drinking barrel-loads of iced coffee. Saw some movies and binge-watched some TV shows (do we need to talk about Apple Cider Vinegar? Yes, yes we do.)
And I spent a lot of time complaining about my hands. My sore, achy, stiff, stupid hands.
I now have arthritis. Is it because I am old? Or maybe just because I collect health conditions? Is it psoriatic arthritis or is it osteoarthritis? (Probably both.) Does it have anything to do with perimenopause? Is Mercury in retrograde? Did I walk under a ladder? Whatever the reason, it sucks. And it hurts.
This diagnosis actually came last year, so I don’t really get to blame 2025 for it. It started in September. One day, I didn’t have pain in my fingers. And then I did. I spent the whole time I was in NY for the UNGA last year noticing that a lot of the time I moved my index fingers I felt a little twinge. Then the twinge moved to other fingers. By the time I was on the plane home there was pain any time I moved my hands. And even when I didn’t. So pretty much all the time.
These are the hands that type words, make divine cakes and pastries, roll out pasta dough, turn the pages of books, hold onto my loved ones, grasp microphones on conference stages and in media opportunities, press down on cutters as I shape biscuit dough, hold the cups containing the coffee that sees me through the day, doom-scroll through the latest update in the cesspit of the world, tickle the tummies of our dogs, pat the top of the head of our cat, point out the specific pasticcino at the pasticceria I want to eat, stir pots of delicious soups and sugo on the stovetop, tap out snappy responses to misogynists on the internet, are waved around as I talk… And all of these things cause pain. All of them.
Here’s something about me: I don’t deal well with pain. I had a little cry in my GP’s office at the end of last year. I cried because there isn’t something I can do to just fix this. Here’s the list of things I read that I should do to help improve arthritis pain: be a ‘healthy’ weight (because diet culture and we’re led to (falsely) believe that people who live in smaller bodies are always perfectly well. Bullshit), stop smoking, limit alcohol, eat healthily, walk and be active. I can’t start to do those things because I already tick each and every box. So what I am supposed to do? Sure, my activity involves little more than walking, but I do get in close to if not 10,000 steps a day, so I’m not completely sedentary.
I’m whingy about it all because the pain is always there, and I don’t get a break. And diabetes is always there, and I don’t get a break. And anxiety is always there, and I don’t get a break. Honestly, I’d take the pain not being there and keep the others any day.
While I wait to see a rheumatologist, I am doing some things that may be easing the pain a little. I say ‘may’ because I don’t really know, and I don’t want to stop them in case it makes it worse. And I spend a lot of time annoying people by telling them my hands hurt. (Don’t believe me – see the 800 words in this blog post – thanks for reading!)
I know the world doesn’t work this way, but sometimes I think it would be nice if those of us already dealing with a shedload of health conditions could sit things out for a bit. By ‘things’ I mean new diagnoses. That would be fair, wouldn’t it? I don’t really want to add another health professional to my contacts list and dedicate more time in my calendar for regular check-ups. And I don’t want to have to learn the lingo of a new health condition, while training a new HCP to understand the way I like to be treated. I don’t really want to have to give more money to the pharmacist for more drugs. I don’t really want to use more emotional bandwidth worrying and thinking about what this means long term. I don’t want to think about being in pain all the time. I also don’t want to wind up not being able to wear the beautiful rings I own, and feel free to call me shallow while I completely ignore you.
And so, that’s where I am right here and now. A mostly gentle start to the year. And sore hands. Very, very sore hands.







5 comments
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February 17, 2025 at 2:14 pm
Rick Phillips
I am sorry to hear about the Arthritis. Autoimmune diseases travel in pairs or triples, or quads. As the owner of three it gives me pause when I hear of a new multiple.
I am not certain if you can find these in Australia, but these are the best I have found for arthritis hand pain. No they do not cure it, but it make it far more tolerable. the tension is just about right for the pain. the brand IMak seems to make a big difference.
rick
https://www.amazon.com/Compression-Arthritis-Arthritic-Rheumatoid-Osteoarthritis/dp/B001GAOHSY/ref=asc_df_B001GAOHSY?mcid=a50df3d236843e6782c206af6fbc4002&tag=hyprod-20&linkCode=df0&hvadid=693289493733&hvpos=&hvnetw=g&hvrand=3959693665594876221&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=1016367&hvtargid=pla-426027087035&psc=1
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February 17, 2025 at 3:14 pm
Colleen Goos
I am so sorry.
I too have arthritis plus a congenital spine condition that will likely keep progressing and limiting my mobility. I’ve been in nonstop pain now for nearly 20 years. Pain sucks and I am so sorry that you are living with it as well.
Something new thing for me is that after 41 years with diabetes, long term complications are beginning to set in. Nobody seems to understand just how frightening it is to actually start losing your vision. I’ve always been nearsighted and have had cataracts since my 20’s, but retinopathy is beyond that. When you’re already doing what you’re “supposed to” it angers me that people just don’t understand that I can’t do any more than I already am. Especially when they say “well you could do more”. I simply can’t and I have to be honest with myself and allow myself to grieve. I have taken to listening to different birds outside to identify them, and that has been an immense help in this process.
There is nothing wrong with grieving for yourself. I was never allowed to grieve for becoming diabetic, as a child. It was always “it could be worse so stop feeling sorry for yourself.” I know it could be worse, but right now losing my vision is scary and I have to grieve.
I guess my point is that your grief about developing health conditions is real, and it is valid. As diabetics we have been forced to think of everything as our fault. No matter the type, nobody gives themselves diabetes and nobody lets themselves develop complications. A perfect A1C can only do so much. None of us made ourselves develop any condition we have.
*hugs*
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February 17, 2025 at 5:32 pm
Deb Kirwan
Hey Renza, like the other people who have commented, autoimmune conditions roam in packs. I live with type 1 (CGM and pump), rheumatoid arthritis and Hashimoto’s. Life has included these 3 passengers for 34 years now.
You think the diabetes police have advice, wait for the joint squad OMG!
Find HCPS who listen to you, make your case known and what you are prepared to try. I have been heard by my specialists x2 for many years and I believe my decisions are respected on my treatment plan which keeps me moving and living my life my way.
You have been a great advocate in the Diabetes world and you will find your people to support your arthritis.
Apple cider vinegar is only good in salad dressing and watching on Netflix!
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February 17, 2025 at 6:10 pm
tmlcp
I’m so sorry to hear about your arthritis, Renza – as if you didn’t have enough to deal with already. It sounds truly horrible. Sending hugs, and I do hope you find a way of reducing the pain.
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February 18, 2025 at 2:02 am
Roberta M.
OMG, are you speaking for me? I too collect health concerns, and almost always collect the 24/7 variety. AND MY HANDS HURT! and my knees and my shoulders and my feet and my back….. and I’m fat, too. And Canadian, so the anxiety is shit.
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